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New resource – Healthcare Organiser

New resource – Healthcare Organiser

Our new Healthcare Organiser is here!

We’ve produced this organiser to be used by families wishing to keep a personal record of their child’s medical history, current needs, and health services input.

We hope this record will help families keep track of their child’s progress and changing medical needs and support them in the conversations they have with their medical team.

Click the button below to view this organiser online or to download your PDF copy. 

We’ve also produced a print friendly version with less colour on the front and back page – to access this version please click on the button below.

Adrenal Insufficiency Support Packs now available!

Adrenal Insufficiency Support Packs now available!

We are delighted to share that our Adrenal Insufficiency Support Pack is here and available to order.

The pack includes a booklet, stickers, keyring and folder.

Our fab Growth Nurse Specialist Sally has created this short video, below, to demonstrate the contents of the pack and show how it all works.

How to order your pack

To order your copy please contact [email protected] including a note of your full name and the address for us to send your pack to.

We’ve also launched our new Adrenal Insufficiency webpage, here.

We’re extremely grateful for funding received which has made it possible to produce these packs.

‘Tops tips when approaching your GP’ infographic launched

‘Tops tips when approaching your GP’ infographic launched

Mental health and wellbeing – top tips infographic launched!

Mental health and wellbeing – top tips infographic launched!

Earlier this year we launched our new range of infographics – From parents, for parents.

Thanks to suggestions received from within our child growth community, we have the latest infographic to share on a really important topic; mental health and wellbeing.

Our ‘Top tips: mental health and wellbeing – From parents, for parents’ infographic is now live and available to read and view as an image, below, and to read and download as a PDF too.

Support Line

If you’d like to speak to our nursing team please contact our Support Line on:

020 8995 0257 | [email protected] | childgrowthfoundation.org/supportline

Measuring at home infographic launched

Measuring at home infographic launched

It’s International Children’s Growth Awareness Day!

A very special day in our calendar to highlight the importance of child measuring, the support available to those with a diagnosis or those with a concern and the information organisations like us provide.

As part of International Children’s Growth Awareness Day we’re launching our new infographic, Measuring at home.

You can read or download our infographic as a PDF here.

If you’d like to speak to our nursing team please contact our Support Line on 020 8995 0257 / [email protected].

‘What is Sotos Syndrome?’ – infographic launched

‘What is Sotos Syndrome?’ – infographic launched

Today, 6 September, marks this year’s Sotos Syndrome Awareness Day.

An important day in our annual calendar to raise awareness of this genetic overgrowth condition, caused by a change in the gene known as NSD1.

Sotos Syndrome is a variable condition – different people can be affected in different ways, and to different degrees. Common things to look out include rapid growth in childhood, distinctive facial features and learning difficulties, along with less frequent indications in babies and children.

As part of Sotos Syndrome Awareness Day, we are launching our new What is Sotos Syndrome? infographic. Read or download our infographic as a PDF here.

Find out more about Sotos Syndrome at childgrowthfoundation.org/sotos. If you’d like to speak to our nursing team with your Sotos queries please contact our Support Line at childgrowthfoundation.org/support.