News
Gastrostomy in Growth Conditions
Some babies born small for gestational age (SGA), or those with a diagnosed growth condition such as Silver-Russell Syndrome may experience feeding difficulties.
Diagnosing Silver-Russell Syndrome
Getting a diagnosis of a rare condition, such as Silver-Russell Syndrome can be a drawn-out process. In the UK, it can take over four years, on average, to get an accurate diagnosis of a rare condition.
What’s Your Story
A brief guide to help you write your experience with growth conditions in order to share and help others in a similar situation.
Trustee Changes
New Chair for CGF After many years of guiding us as Chair, Nick Child has stepped down from this position for family...
Silver-Russell Syndrome Height and BMI Study
New Silver-Russell Syndrome Study Latest research supports the use of growth hormone treatment in Silver-Russell...
PenCycle
Reclycing Initiative Launched by Novo Nordisk PenCycle is the exciting new environmental initiative by Novo Nordisk...
Virtual Convention 2020
Due to COVID restrictions our 2020 Annual Convention was cancelled. We adapted and moved the event online. It was different, but still let us bring families together in much-needed support.
CGF Virtual Convention
***Exciting News*** We are delighted to announce the dates for our Virtual Convention. It is free to full members this...
NICE Faltering Growth Quality Standard
NICE has published a quality standard for faltering growth The faltering growth quality standard covers recognising...
RARE Youth Revolution
The RARE Youth Revolution has begun RARE Revolution Magazine have announced the launch of the RARE Youth Revolution...
Virtual Coffee and Chat Groups
Virtual Support Groups We are really excited to announce the launch of a new support group service. We are introducing...
‘Growth Matters’ Podcast Launched
'Growth Matters' - podcast launched We are delighted to announce the launch of our very own podcast, which we have...
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