News

Santa Run

Santa Run

Autumn is here. Leaves are turning brown. There is a chill in the air and soon there will be frost on the ground. That can only mean one thing… Christmas is coming! So why not challenge yourself to a festive fundraiser and support our incredible work. It is really...

CGF Virtual Convention

CGF Virtual Convention

***Exciting News*** We are delighted to announce the dates for our Virtual Convention. It is free to full members this year, so please make sure your membership is up to date. To become a full member visit: Membership

NICE Faltering Growth Quality Standard

NICE Faltering Growth Quality Standard

NICE have published a quality standard for faltering growth The faltering growth quality standard covers recognising and managing faltering growth in babies (aged up to 1 year) and preschool children (aged over 1 year). It describes high-quality care in priority areas...

RARE Youth Revolution

RARE Youth Revolution

The RARE Youth Revolution has begun RARE Revolution Magazine have announced the launch of the RARE Youth Revolution movement, along with its new online home at rareyouthrevolution This online platform is giving a voice to the youth of RARE, sharing news and views on a...

Virtual Coffee and Chat Groups

Virtual Coffee and Chat Groups

Virtual Support Groups We are really excited to announce the launch of a new support group service. We are introducing 'coffee and a chat' virtual groups. A one-hour online meeting where you can get together to share support and information. The groups will be...

Annual Convention 2020 – Cancelled

Annual Convention 2020 – Cancelled

2020 CGF Annual Convention - CANCELLED Given the severity of the current COVID-19 pandemic, and after much deliberation, we have made the decision to cancel this year's CGF Annual Convention, that was to have taken place from 2nd to 4th of October in Warwick. It is...

‘Growth Matters’ Podcast Launched

‘Growth Matters’ Podcast Launched

'Growth Matters' - podcast launched We are delighted to announce the launch of our very own podcast, which we have appropriately called 'Growth Matters'. Growth Matters is a monthly 'chat magazine' that will bring latest news, research updates, details of growth...

Particpants Needed for Growth Hormone Therapy Study

Particpants Needed for Growth Hormone Therapy Study

Particpants Needed for Injectable Growth Hormone Therapy Research A UK based market research agency called Bryter is looking for UK residents to take part in research studies on the subject of injectable human growth hormone therapy. They have two studies which will...

Participants Needed for Pituitary Conditions Study

Participants Needed for Pituitary Conditions Study

Understanding the Needs of Children with Pituitary ConditionsDr Alyson Norman from the University of Plymouth and Dr Sue Jackson from the University of the West of England are looking for participants in a study of children and young people with pituitary...

Recruits Needed for Sensory Profile Study

Recruits Needed for Sensory Profile Study

New project: Sensory profiles in rare genetic syndromes Researchers at the University of SheffieldWe are currently recruiting parents/caregivers of children (aged 3 – 14 years) with a diagnosis of either Sotos syndrome or Tatton-Brown Rahman syndrome (TBRS) to take...

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