Support from Child Growth Foundation


At the Child Growth Foundation we support children, adults and the families of those diagnosed with growth conditions, the undiagnosed and those seeking diagnosis. 


There are a number of undergrowth and overgrowth conditions we support. Click on the links to the right for more information about the conditions our families are diagnosed with.

On the individual condition pages you can also find links to more information, including CGF information booklets.

Contact us

Need to speak to someone? Our support line is available to anyone concerned about their child’s growth or if they have a diagnosed growth condition. We are here to listen and support you. Call us on 020 8995 0257.

Our staff work on a part time basis and if we are not able to answer your call please leave a message and we will get back to you as soon as possible. Alternatively please email us at [email protected] to arrange a time to chat or complete our Support Line contact form.

By contacting the Child Growth Foundation Support Line you are providing consent for us to collect, process and store your data to provide you with the information or services you are contacting us about. Read our Support Line Privacy Statement for full details.

Facebook group

We have a range of closed Facebook groups for peer to peer support in the child growth community.

These groups are a chat forum for parents and carers of children with a diagnosed growth conditions and their families, for adults with the conditions themselves, and for those working towards a diagnosis. Click to request to join our main CGF Facebook group or visit our Facebook support groups page with further details on our range of groups available. 

Personal stories

We are so grateful to those who have been kind enough to share with us their experience of living with a growth condition. You can browse their stories here.

If you’d like to share your story we’d love to hear from you at [email protected]


Genetic research is evolving all the time. Latest updates on research findings and projects can be found here.  

Key downloads

Below you can find some key downloads. Specific condition downloads can be found on each condition’s page, which you can navigate to here

Child Growth Foundation

c/o Kinnair Associates Limited
Aston House
Redburn Road
Newcastle upon Tyne

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Charity registered in England & Wales | Charity number: 1172807 | Company number: CE010204.
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