Support from Child Growth Foundation

At Child Growth Foundation we support children, adults and the families of those diagnosed with growth conditions, the undiagnosed and those seeking diagnosis. 


There are a number of undergrowth and overgrowth conditions we support. Click on the links to the right for more information about the conditions our families are diagnosed with.

On the individual condition pages you can also find links to more information, including CGF information booklets.

Contact us

Need to speak to someone? Our telephone support line is available to anyone concerned about their child’s growth or if they have a diagnosed growth condition. We are here to listen and support you. Call us on 0208 995 0257.

Our staff work on a part time basis and if we are not able to answer your call please leave a message and we will get back to you as soon as possible. Alternatively please email us at to arrange a time to chat.

Facebook group

We also have a very active closed Facebook group which provides support to many.  You can request to join the Facebook group here.  

Personal stories

We are so grateful to those who have been kind enough to share with us their experience of living with a growth condition. You can browse their stories here.

If you’d like to share your story we’d love to hear from you at


Genetic research is evolving all the time. Latest updates on research findings and projects can be found here.  

Key downloads

Below you can find some key downloads. Specific condition downloads can be found on each condition’s page, which you can navigate to here

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Newcastle upon Tyne

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Charity registered in England & Wales | Charity number: 1172807 | Company number: CE010204.
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