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Virtual Cuppa & Chat: A chat about injections – 16 June 2025

Virtual Cuppa & Chat: A chat about injections – 16 June 2025

by | May 8, 2025 | Cuppa and Chats, News, Support

We’re introducing new topic specific Virtual Cuppa & Chats, starting with an injection support chat on Monday 12 June at 12-1pm.

We are excited to share our first themed Virtual Cuppa & Chat, which will be dedicated to talking about injections.

Everyone is welcome whatever stage of the journey with injections you are on.

Whether you are about to embark with the first injection, already having daily, weekly, or less frequent injections (or have been there and done it!) come and join us to share your experiences and support each other.

Email [email protected] to register.

Please note places are limited to a maximum of 10 attendees.

Save the date!

If you can’t make daytime, or can’t do this date, we’ll be hosting our next evening Virtual Cuppa & Chat at 7-8pm on Monday 21 July. Please note this won’t be a themed chat, but rather will be our regular bi-monthly session.

CamRARE Rare Patient Passport

CamRARE Rare Patient Passport

by | May 8, 2025 | News

We are delighted to have joined the growing global network of patient groups partnering with CamRARE (Cambridge Rare Disease Network) to bring their ‘This Is Me’ Rare Patient Passport to the child growth community, which includes tools to communicate your rare condition, or your child’s rare condition, to new people.

Sign up for yours / your child’s here: www.camraredisease.org/patient-passport

Since launching there have been over 2,000 applications and CamRARE have partnered with more than 60 patient groups worldwide – the Child Growth Foundation are so pleased to be supporting this global initiative as part of our work to make a difference wherever growth is a concern.

Updated resource: Puberty and the Tanner Stages

Updated resource: Puberty and the Tanner Stages

by | Apr 11, 2025 | Information, News

 Updated resource: Puberty and the Tanner Stages

Puberty marks several stages of physical, emotional and developmental changes, with the Tanner Stages helping to track progress through various milestones.

Our popular Puberty and the Tanner Stages factsheet details these stages for boys and girls, and we have just published our latest, updated version of this resource on our website.

Read Puberty and the Tanner Stages
CGF attends RCPCH Conference

CGF attends RCPCH Conference

by | Apr 10, 2025 | Events, Health Care Professionals, News

In March the CGF attended the RCPCH (Royal College of Paediatrics and Child Health) three day conference in Glasgow. 

Sally from the CGF team was really grateful to share a space with Harlow Solutions who produce (amongst many things) the ‘red book’, also known as the Personal Child Health Record (PCHR).

RCPCH are the membership body for paediatricians in the UK and around the world. The theme for this year’s conference was ‘Future child health: innovate, integrate and inspire’. This 2025 event also featured a dedicated area and presentation theatre on childhood rare diseases.

The event was a brilliant opportunity to share our materials and talk to paediatricians from across the UK. It was also fantastic to connect with the other patient support groups in attendance, many of whom we have never met or worked with before. We particularly valued sharing ideas of how we support our rare community and identifying ways we can collaborate to deliver greater impact, reaching as many families as possible and provide the most appropriate, meaningful support.

 

Thank you Harlow for inviting us to join you,  and to the RCPCH for having us!

 

Virtual Cuppa & Chat: 12 May 2025

Virtual Cuppa & Chat: 12 May 2025

by | Mar 27, 2025 | Cuppa and Chats, News, Support

Join us for a cuppa and a chat

Join our latest lunchtime Virtual Cuppa & Chat with our nurses Sally & Lisa on Monday 12 May at 12-1pm on Zoom.

Email [email protected] to register.

Please note places are limited to a maximum of 10 attendees.

It’s wonderful to read feedback like the below from those who’ve attended previous Virtual Cuppa & Chats:

“I just wanted to say a big thank you. The information was so helpful. It was a comfort to talk to you and the other parents, I feel less alone with what we are going through.”

Feedback like this is the exact reason we hold our Virtual Cuppa & Chats, and we look forward to our upcoming chats throughout this year. 

Save the date!

If you can’t make daytime, or can’t do this date, we’ll be hosting our next evening Virtual Cuppa & Chat at 7-8pm on Monday 21 July.

Themed Virtual Cuppa and Chat: injections

We’re also introducing new topic specific Virtual Cuppa & Chats, starting with an injection support chat on Monday 12 June at 12-1pm.

We are excited to share our first themed Cuppa & Chat, which will be dedicated to talking about injections. Everyone is welcome whatever stage of the journey with injections you are on.  Whether you are about to embark with the first injection, already having daily, weekly, or less frequent injections (or have been there and done it!) come and join us to share your experiences and support each other.