Filled with updates, personal stories, medical community news, opportunities to get involved and lots more, you can read CGF News Winter 2025 online here.
The BEOND study is examining a range of clinical outcomes in people with neurodevelopmental disorders, including growth conditions associated with intellectual disability. The BEOND study was previously open to families with a growth condition and intellectual disability from 2023 to 2024, and will be open again in spring 2026.
Participants are/will be parents/caregivers of people with growth conditions associated with intellectual disability – completing a battery of questionnaires via an online survey or posted paper pack. These questionnaires take about 60 minutes to complete. All families will receive a personalised feedback report, summarising their responses to the survey, as well as an Amazon voucher after completing the survey. All families’ data will remain anonymous and confidential.
The study team have shared a summary of the data that they collected and what they did with this data, which you can see below as images, or as a PDF report here.
Fin-tastic Meet Up at SEA LIFE Manchester
In November we hosted our final Meet Up of 2025, and had such a wonderful trip to SEA LIFE Manchester with our child growth community. Thanks to everyone who made it such a fin-tastic trip – roll on 2026 and our next series of Meet Ups!
Thanks to Merlin’s Magic Wand Children’s Charity we’ve been able to offer tickets to eligible families through their Magical Days Out opportunity, allowing the CGF to share this brilliant Meet Up opportunity with our members and the wider child growth community in 2025. They’ve kindly provided tickets for our Meet Ups at LEGOLAND® Windsor Resort in May, LEGOLAND® Discovery Centre Birmingham in August and this trip to SEA Life Manchester.Â
Read more about our Meet Up events here.
We’re excited to launch our latest infographic: Top tips – From parents, for parents – Travelling with medication
The infographic, below, is part of our From parents, for parents range where parents and carers share their suggestions based on their own experiences on a range of topics we are approached for support with, such as injections, approaching GPs about growth concerns, dealing with comments about your child’s size, and this newest infographic on travelling with medication.
Thanks very much to the parents and carers in our community for sharing these below suggestions to support others.
You can read or download our infographic as a PDF here or access as an image here. To see our full range of infographics, including the full From parents, for parents range, visit: childgrowthfoundation.org/infographics.
Our guide to festive fundraising is here 🎄
Inside our free digital Christmas Fundraising Pack, you’ll find everything you need to make your festive fundraising a success – from handy tips and creative ideas to guidance on how to pay in your donations safely and responsibly.
Whether you’re baking mince pies, dashing through a fun run, or hosting a Christmas quiz, we’re here to cheer you on every step of the way!
Every pound you raise will help ensure that we can support children, young people, adults and their families with growth conditions and concerns.
Read or download your free pack here.
Anything at all you’d like to discuss or any ideas you’d like to share with us please don’t hesitate to contact our friendly team at [email protected] or on 020 8798 2139.
