At the Child Growth Foundation we are often contacted by organisations, healthcare professionals and academic institutions who are conducting surveys, studies and research projects, to drive progress and advancements relating to our child growth community.
These can range from rare disease questionnaires, projects looking at related neurodevelopmental factors and research in to treatments for growth conditions, and many more.
Where appropriate, we will share these with our community on our website, our social media channels, our bi-annual newsletter, and/or by email.
Alongside sharing opportunities to take part, we also share updates we receive with outcomes of projects, which have often been made possible thanks to the kind contributions our community make by taking part.
Opportunities to take part in external studies, surveys and research projects
Growth Hormone Injection Device – Paid External Research Study
Paid External Research Participation Opportunity MindSight Research are looking to invite people to participate in a research study which is looking at an injection device to administer medication to people diagnosed with one of the following conditions: • Growth...
External paid study opportunity: For children who use an injection device to administer medication to treat a health condition
Intelligent Fieldwork are working with their client, a health communications company, on a study for children who use an injection device to administer medication to treat a health condition. They are looking to speak with children and their parent/guardian who may be...
Research project: What are the neurodevelopmental, behaviour and feeding issues in children and young people with Silver-Russell syndrome?
Researchers at Aston University are working with Birmingham Women’s and Children’s Hospital to better understand the needs of children and young people with Silver-Russell syndrome. The research team are inviting parents/carers of children aged 3-16 years with...
GENROC study: spring update
The GenROC (Genetic Rare conditions Observational Cohort) study has now been open for 9 months and is open at 21 NHS sites across the UK. 117 families have all of their initial questionnaires completed and another 100 are in the early stages of joining the study....
Overgrowth Syndromes Alliance – Patient Priority Survey
Overgrowth Syndromes Alliance The Overgrowth Syndromes Alliance (OSA) has been recently formed, and we’re really pleased that Child Growth Foundation are involved in this international alliance. OSA Patient Priority Survey The OSA developed a patient priority survey...
StratifID – Stratifying Imprinting Disorders
StratifID – Stratifying Imprinting Disorders Justin Davies, Gabriella Gazdagh, Deborah Mackay and Karen Temple StratifID is the latest study by the Southampton Imprinting Research team and is funded by the Medical Research Council. The study aims to understand how a...
GENROC study
GENROC study opens for recruitment in the UK: Improving the treatment for children with GENetic Rare disease: Observational Cohort study This study has been set up by Dr Karen Low, a consultant clinical geneticist based in Bristol. Dr Low is particularly...
Mental Health Resource Project
The Child Growth Foundation wants to provide more psychological support for young people living with a growth condition. As part of this ongoing work we have launched a project to find out more about young peoples’ experiences of mental health and living with an...
Updates and outcomes of external studies, surveys and research projects
Understanding the link between child growth and development
Understanding the link between child growth and development: Dr Joe Freer, NIHR In-Practice Fellow, Barts and The London School of Medicine, Queen Mary University of London (QMUL) Children’s growth and development are closely connected, but the links between them are...
Child growth and development in East London study: an update
Child growth and development in East London study: an update Dr Joanna Orr, Postdoctoral researcher, Queen Mary University London (QMUL) The Child Growth and Development in East London (CGEL) study is currently being rolled out in Tower Hamlets. The study, conducted...
Somatrogon (Ngenla) – Weekly Growth Hormone Therapy
Somatrogon (Ngenla) – Weekly Growth Hormone Therapy: An update from Peter Laing – Advanced Nurse Practitioner, Endocrinology, Alder Hey Children’s Hospital Background Treatment with daily GH injections has been a mainstay in the management of GHD for close to 40...
Manchester BabyGRO study update
Foreword: by Chloe Lane We are pleased to see the final report from the Manchester BabyGRO study which has some important implications for early identification of children born small who may be at risk of developing health problems in later life and who would...
Investigating Behaviour in Silver-Russell Syndrome
The findings from this study indicate that some individuals with SRS have difficulty with autistic traits and these tend to be more common in individuals with SRS mUPD7.
Communication Abilities of Children with Sotos Syndrome
The findings from this research demonstrate that the majority of children with Sotos syndrome struggle with language and communication skills
Do you have a study, survey or research project to share?
If you are the organiser of a study, survey or research project you would like to share with our community, please contact our team at [email protected] and we can share our request form with you to complete.
Please note that as a part time team with limited capacity we have our communications scheduled in advance and so are unfortunately unable to accommodate last minute requests.
For any studies, surveys and/or research projects with a fixed end date for completion please give 2-4 weeks’ notice for us to share with our community and for our community to have sufficient time to complete.
