About the Child Growth Foundation

About us

The Child Growth Foundation (CGF) makes a difference wherever growth is a concern.

We are focused on the support, understanding and management of rare growth conditions to improve the lives of children, adults and families with growth conditions, those with a concern and those seeking a diagnosis.

Our vision

The UK has a system where all families affected by growth conditions can receive a clinical diagnosis and corresponding care plan, and no-one feels alone or isolated.

Our purpose

The CGF’s role in moving towards that vision, and the reason we exist, is to:

• Support children, adults and families affected by rare undergrowth and overgrowth conditions.
• Fund research into greater understanding and management of these conditions.
• Raise awareness and understanding of growth conditions, to improve their detection and support their earlier diagnosis.
• Support healthcare professionals in the optimal diagnosis and management of these conditions.

Our values

In pursuit of our vision we will be:

• Compassionate – putting people first with humanity, warmth and care
• Professional – gaining credibility from leading health care professionals and associated organisations
• Relentless – in our pursuit of a brighter tomorrow for all families impacted by growth conditions

Conditions supported by Child Growth Foundation

The CGF provides expert information, advice and support relating to all growth conditions including:

• Growth Hormone Deficiency (GHD)
• Hypopituitarism (MPHD)
• Primary IGF-1 Deficiency
• Premature Sexual Maturation including Precocious Puberty
• Silver -Russell syndrome (SRS) / Russell-Silver syndrome (RSS)
• Smith-Kingsmore syndrome (SKS)
• Intrauterine Growth Restriction (IUGR)
• Small for Gestational Age (SGA)
• SHOX Deficiency
• Sotos syndrome
• Tatton-Brown Rahman syndrome (TBRS)
• Weaver syndrome
• Patients without a diagnosis/awaiting a diagnosis 

As research into growth continues, the CGF continues to evolve to support children, young people, adults and their families with both newly diagnosed conditions and those seeking diagnosis.

CGF excels in providing support to rarer growth conditions. For some conditions, other specialised support organisations exist – the CGF has good relationships and contacts with these organisations and can advise on other sources of support and information.