When a child is diagnosed with a life-altering rare condition, their life is changed. The parents have to face a journey they weren’t expecting, and weren’t prepared for. There is a way through it, but the isolation that rare conditions produce, the lack of awareness and understanding around them, means that life may be a stream of worries, of having nowhere to turn, of having no one to talk to.
Our parent support team help families get through some of the most challenging moments of their life. Each day we see the difference our support makes. But every day another child is diagnosed with a rare, life-altering, growth condition and a family is looking for somewhere to turn to for advice and support.
making a difference, wherever growth is a concern
£10 could pay for our nurse specialist to support a family, helping them understand the life changes a growth condition diagnosis makes
£25 could help fund an awareness pack for hospitals, providing them with vital information to hand to newly diagnosed families
£50 could pay towards the cost of our annual convention, a place where children can meet other children living with the same rare condition
Where your money goes
Each £1 the Child Growth Foundation spends on raising money, £5.70 is generated to help families in need of our support.
And each £1 raised, only costs us 17.5p to raise it.
We are a small charity who receive no statutory support. We have to raise every penny we spend, and we couldn’t do it without your amazing generosity.
Other Ways to Support
Making a donation isn’t the only way you support. There are many ways you can get involved and help us to raise funds.