My involvement with the Foundation began in 1999 following my daughter’s diagnosis with a growth condition. The support, information, networking and exchange of experiences and knowledge was really valuable to us as a family then, and is equally important today. I quickly became more involved with the CGF and took on the role of Group Leader then trustee. More recently I am proud to have the role of Chairperson of the Child Growth Foundation.
I am married to Jenny and we have three daughters; Jessica, Chloe & Georgia.
My work responsibilities are based on Marketing & Technology for an industrial company. The main skills that I perceive are of most benefit to the CGF include business management, marketing, leadership and team working.
I am the mother of an adult daughter, Helen, with RSS Mupd7. I became a trustee about 10 years ago to give something back to the Foundation after receiving a lot of practical and emotional support during Helen’s first years. I work as a Financial Controller for a small company in the private sector and in my spare time I enjoy singing in a choir (any other ‘Rockies’ out there?!), playing the ukulele in a local group and playing tennis when the weather permits.
I have been a trustee of the CGF for 17 years since our daughter, Emily, now aged nearly 19 years was diagnosed with RSS (11p15) and we attended our first convention. Along with husband Dan, we also have a second daughter, Fran, soon to turn 14. I work in children’s publishing as a foreign rights consultant, I am based from home but enjoy travelling 3-4 times per year to international trade fairs.
Our son James is nine years old and was first diagnosed with RSS MuPD7 when he was 18 months old. He was IUGR and born at 32 weeks weighing 2lb 6oz. James had severe reflux, delayed gastric emptying, global development delay and still has a gastrostomy, which is now just for medication. We have been members of the CGF for the last eight years and would like to now try and give a little back to the charity that has helped us so much. I have over 20 years experience in marketing communications and PR in the public and third sectors. I live in Winchester with my husband Rob, James and our daughter Olivia.
My sister, Romana, has Sotos syndrome and my family have been involved with the CGF for many years. I completed a PhD at the University of Sheffield which involved researching the cognitive and behavioural profiles associated with Sotos syndrome. I have also conducted research on the psychological aspects of Tatton-Brown Rahman syndrome, Weaver syndrome and Silver-Russell syndrome.
I currently work as a research associate in the NHS at a specialist mental health trust in London.
Hello, I’m Steve and I have GHD as did my father before me. I had treatment as a child in the 1970’s but had a break for a number of years until I found out that treatment had been approved for adults and I was subsequently accepted for treatment, which I still receive. I joined the CGF a number of years ago because of this and then I found out that my son Robert also inherited the condition.
I have worked all over Europe and am a qualified accountant and a charterered secretary. Having recently taken early retirement I felt it a good time to use my experience in business and try to give something back.
My name is Georgia Child and I have been a member of the Child Growth Foundation for 20 years. I have Russell Sliver Syndrome MUPD7 and Growth Hormone Deficiency. I work part time for ChemDry Excel, which is a cleaning company, doing their admin. My role within the Child Growth Foundation will be working with the teen and young adults who are affected with growth conditions.
I am married with 4 children. Our daughter, Skye is 13 and has evolving panhypopituitaryism. She was diagnosed at 2 with GHD, lost cortisol at the age of 7; and recently lost her thyroid.
We have found her condition very hard at times but discovered so much support through the CGF.
In my spare time I like to make chocolate and bake and I have recently started knitting.
I have been a member of the Child Growth Foundation for over ten years when I first had concerns about Jake (my son) who had a lack of growth. We were really struggling as we were dismissed by our local healthcare professionals. Immediately we were given the most fantastic support from Jenny and the CGF which resulted in Jake’s diagnosis of SGA and Growth Hormone Deficiency.
I have a keen interest in mental health and wellbeing and outside the Child Growth Foundation, I work as an Organisational Health and Wellbeing Officer within the Civil Service and I am also a fully qualified counsellor with a small private practice. I recognise that having children with additional needs can have an impact on the whole family and I am hoping to bring my skills and experience with mental health and wellbeing to the board of trustees.
I was born and grew up in Pontypridd, in Wales and studying at Cardiff University, with BSc (Hons) and MBA degrees, I joined the pharmaceutical industry in 1990. I performed a range of roles in the industry, including sales representative, sales manager, commercial manager, and marketing manager and from 2002, I worked in growth hormone marketing and, as a European marketing director at Pfizer.
I am passionate about growth disorders and have worked with a range of organizations to develop literature and support materials for the children and their families and have won UK and European awards for several of my growth hormone marketing campaigns. I am so pleased and excited to be part of the Child Growth Foundation and am greatly looking forward to supporting us in any way I can.
I’ve been a member of the CGF for 18 years, since our daughter
Katie was diagnosed with Soto’s Syndrome.
I have decided to become more involved with the charity this year to help raise more awareness of this overgrowth syndrome and be able to support parents.
I work at a local primary school with children with learning difficulties and I’m also a governor within the school.
In my spare time I enjoy spending time with family and friends.
Membership & Communications Manager
I have worked for the Foundation since September 2001. Currently my role is the Membership & Parent Support Manager. I organise the annual convention, liaise with medical professionals, assist with fundraising, compile the newsletter, support members and offer support and advice via the CGF helpline and other media.
My initial involvement with the CGF began as my daughter, Georgia, who is now 20 years old has Russell Silver Syndrome, MUPD7. I am married to Nick and we have three daughters; Jessica, Chloe & Georgia.
I started working for the CGF in May 2016. I first contacted the CGF regarding by son. Samuel was born prematurely, and was IUGR/SGA. At 4 years old he was diagnosed with Growth Hormone Deficiency.
I have two boys, Samuel (6) and Sebastian (4) and am married to Suman.
I have recently joined the CGF as Fundraising and Marketing Manager and have ten years’ experience in the charity sector at senior management level. My passion is the development and growth of small charities and am so excited to be part of such a friendly and passionate team.
I am married to Michelle and we have one, very annoying, cat. In my spare time I am, slowly, learning to play the guitar and trying to improve my French.
Growth Nurse Specialist
I am delighted to join the cgf as growth nurse specialist. I’m a paediatric nurse with over 20 years experience in various hospital and community settings.
Alongside this role, I continue to work part time on the general paediatric ward at my local hospital.
I am passionate about improving the healthcare journey for both the child and family through education and joint working, particularly those with rare conditions.
I am married to Jamee, we have two children – Otto (10) and Frieda (6). I love to cook, exercise and escape to the allotment!