My involvement with the Foundation began in 1999 following the diagnosis of my daughter with Russell Silver Syndrome. I quickly became more involved as I took on the role of Trustee for the RSS/IUGR/SGA group. I later took on the role of Deputy Chair and then in 2014 the role of Chairman.
I am married to Jenny and we have three daughters; Jessica, Chloe & Georgia.
My work responsibilities are based on Marketing & Technology for an industrial company. The main skills that I perceive are of most benefit to the CGF include business management, marketing, leadership and team working.
I am the mother of an adult daughter, Helen, with RSS Mupd7. I became a trustee about 10 years ago to give something back to the Foundation after receiving a lot of practical and emotional support during Helen’s first years. I work as a Financial Controller for a small company in the private sector and in my spare time I enjoy singing in a choir (any other ‘Rockies’ out there?!), playing the ukulele in a local group and playing tennis when the weather permits.
I have been a trustee of the CGF for 14 years since our daughter, Emily, now aged nearly 16 years was diagnosed with RSS (11p15) and we attended our first convention. Along with husband Dan, we also have a second daughter, Fran, about to turn 11. I work in children’s publishing as a foreign rights consultant, I am based from home but enjoy travelling 3-4 times per year to international trade fairs.
I have been on the CGF Board of Trustees for many years and was treasurer for more than 18 years. My younger son, now 27, has MPHD. My day job is working for a food and beverage company as a member of their in-house tax team – but before that I worked at HMRC for just less than three years on the rewrite of the part of the tax legislation that relates to charities.
I am married to Adam and a full time Mum to three Children. Luke, Ethan & Summer.
As a family, we joined the CGF Family over four years ago. It’s a place where we can all feel normal.
In my spare part I love to bake and I can make a mean carrot cake.
Our son James is nine years old and was first diagnosed with RSS MuPD7 when he was 18 months old. He was IUGR and born at 32 weeks weighing 2lb 6oz. James had severe reflux, delayed gastric emptying, global development delay and still has a gastrostomy, which is now just for medication. We have been members of the CGF for the last eight years and would like to now try and give a little back to the charity that has helped us so much. I have over 20 years experience in marketing communications and PR in the public and third sectors. I live in Winchester with my husband Rob, James and our daughter Olivia.
My sister, Romana, has Sotos syndrome and my family have been involved with the CGF for many years. I recently completed a PhD at the University of Sheffield which involved researching the cognitive and behavioural profiles associated with Sotos syndrome. I am now working as a research associate at the University of Sheffield on a project investigating the psychological aspects of Weaver syndrome and Tatton-Brown Rahman syndrome. In my spare time, I enjoy being active and regularly play football. I also play the oboe in a local wind band.
My name is Georgia Child and I have been a member of the Child Growth Foundation for 20 years. I have Russell Sliver Syndrome MUPD7 and Growth Hormone Deficiency. I work part time for ChemDry Excel, which is a cleaning company, doing their admin. My role within the Child Growth Foundation will be working with the teen and young adults who are affected with growth conditions.
I am married with 4 children. Our daughter, Skye is 13 and has evolving panhypopituitaryism. She was diagnosed at 2 with GHD, lost cortisol at the age of 7; and recently lost her thyroid.
We have found her condition very hard at times but discovered so much support through the CGF.
In my spare time I like to make chocolate and bake and I have recently started knitting.
Hello, I’m Steve and I have GHD as did my father before me. I had treatment as a child in the 1970’s but had a break for a number of years until I found out that treatment had been approved for adults and I was subsequently accepted for treatment, which I still receive. I joined the CGF a number of years ago because of this and then I found out that my son Robert also inherited the condition.
I have worked all over Europe and am a qualified accountant and a charterered secretary. Having recently taken early retirement I felt it a good time to use my experience in business and try to give something back.
Membership & Communications Manager
I have worked for the Foundation since September 2001. Currently my role is the Membership & Parent Support Manager. I organise the annual convention, liaise with medical professionals, assist with fundraising, compile the newsletter, support members and offer support and advice via the CGF helpline and other media.
My initial involvement with the CGF began as my daughter, Georgia, who is now 20 years old has Russell Silver Syndrome, MUPD7. I am married to Nick and we have three daughters; Jessica, Chloe & Georgia.
I started working for the CGF in May 2016. I first contacted the CGF regarding by son. Samuel was born prematurely, and was IUGR/SGA. At 4 years old he was diagnosed with Growth Hormone Deficiency.
I have two boys, Samuel (6) and Sebastian (4) and am married to Suman.
Fundraising & Marketing Manager
I have recently joined the CGF as Fundraising and Marketing Manager and have ten years’ experience in the charity sector at senior management level. My passion is the development and growth of small charities and am so excited to be part of such a friendly and passionate team.
I am married to Michelle and we have one, very annoying, cat. In my spare time I am, slowly, learning to play the guitar and trying to improve my French.