We Are Recruiting

We Are Recruiting

Operations, Marketing & Communication Manager

Job Summary

Founded in 1977, the Child Growth Foundation (CGF) is the leading UK charity focusing on the support and management of rare growth conditions affecting children and adults. The purpose of this role is to drive awareness of, and support for, the CGF’s mission to improve the detection, treatment, and management of diverse growth conditions in children – as well as providing support and information for their families – through strategic creative campaigns and ongoing network outreach.

The role’s aim is to consolidate and raise the profile and visibility of the Child Growth Foundation and to position it as the leading UK authority and thought leader on conditions affecting child growth.

About The Role

The Operations, Marketing & Communication Manager will play a key leadership role in the day-to-day operations of the Child Growth Foundation, with responsibility for the charity’s marketing and PR activities, the management of its staff, and its communications with members, medical professionals, and media.

Key Responsibilities

• Develop and ensure implementation of effective marketing plans including day-to-day communications to achieve agreed strategic goals
• Develop and implement fundraising initiatives
• Manage the administration of the charity’s operations including budgetary control, HR, regulatory compliance, and event organisation
• Support the Board of Trustees to arrange meetings, take and distribute minutes, and organise our annual AGM

To Apply

Please send a copy of your CV along with a covering letter, explaining clearly your suitability for the post and how you meet the skills and experiences required for the role, to:

Jeff Bolton Chair of Trustees

Closing Date

The closing date for applications is 11th September 2022

Initial interviews will be held, via Zoom, 12-13 September 2022

Final interview date: tbc

The successful candidate will be required to undergo a DBS check.


What’s Your Story

What’s Your Story

A Guide to Sharing Your Story

Storytelling is one of the most powerful ways to help raise awareness of rare medical conditions.

Stories can help so many people. People who need to know they aren’t going through it alone, people who can identify with what is going on and help speed up a diagnosis, people looking to raise funds and increase understanding of rare conditions that precious little is known about.

 Stories create a connection. They help to explain our world and they help others to make sense of their world. Let’s face it, we all like a good story! And we’d really like you to share your story.

 If you’ve thought about writing down and sharing your experience but aren’t sure where to start, the following 3-step plan might help:

Stages of storytelling


A good planning stage sets up the foundation for the rest of the process.

Think about why you want to share your story. What is the main thing you want people to feel, think or do? Was it that you found it so hard to get a diagnosis? Was it that nobody seemed to listen to you? Was it that you found great support somewhere and want to let people know? There are many ‘angles’ you could take with your story. It might be that you want to tell the whole story, which could take some time, so perhaps consider telling it in stages.

Once you have your angle, think about the obstacles that were in your way. The obstacles are the ‘conflict’ and conflict is crucial for storytelling. It doesn’t mean physical conflict, though it sometimes might be, think more about the hurdles you had to jump over to get to the point you needed to be at.

 The final part of the planning stage is the ‘emotion’ of the journey. What did you feel? Emotion engages the reader and makes the story more compelling, more ‘real’.


CGF Storytelling

(or, what did you want, what stopped you, how did you feel)


With the basics of your story written down at the planning stage, the building stage is the fleshing out of the details.

Think of particular incidents that will help bring your story to life. Was there a particularly difficult appointment, a reaction to a medication – these snippets and anecdotes help build the emotion and place the reader in the journey with you. They can be funny, or sad, or frustrating – the key thing is that they will be emotional.

 If you struggle to think of some, talk to family and friends – it could be that you’ve forgotten about ‘that incident’ and that speaking to a friend will bring it all back.


The final stage (well almost the final stage) is the writing.

The best tip here is to write as if you were telling someone the story. Keep it conversational and informal.

 Use plain English (if that is the language you are writing it in!). Use short sentences, this helps keep it punchy and quick and whisks the reader along the journey.

Most of all, be yourself. This is your story, it is very personal to you. Don’t think you have to write it the way people think you should write it. It is your experience and if you tell it in your ‘voice’, not only will be easier to write, the reader will engage more as they will get a sense of who you are – which builds the connection.

The Afterwards Bit

Once you’ve planned, built and written your story the best thing to do is sit back for a while.

Let it rest before looking back over it. Does it tell the story you wanted to tell? Are you happy with it? Once you’ve re-read it and tweaked it, perhaps give it to a friend or family member to read through.

 Finally, well almost finally, leave it to rest a little bit more. The experience of sharing your story might well bean emotional one. You will be re-living events and emotions that might well have been very tough at the time. You might be upset again. Writing your story can be a rewarding release and feel like closure, but it also might stir up emotions again. So let the story sit for a bit longer, make sure you feel ready to share it. Just because you’ve written it, doesn’t mean you have to share it. Are you ready to let the world see it? If not, do not worry, put it in a drawer and let it rest until you are ready.

If you are ready to share it, then you can send it to us – and if possible, with photos. Photos are another way of giving the story life and engaging the reader.

You’re Done

That’s it. You’ve written and submitted your story, and it will be used to help encourage and inspire others.

We could use that story in:

  • Our newsletter
  • Our e-newsletters
  • Our website
  • In fundraising applications
  • Annual reports

The most important thing is that you own your story, we will ask you where we can use it and we will only use it in that way. If you feel it is time for us to stop using it, then let us know. You own your story and we wont use it without your permission.

What Next

If you are interested in telling your story, get in touch

Or, perhaps you would like to tell your story on film? We have recently used personal stories in the video presentation that Sally, our Growth Nurse Specialist, has been developing. Get in touch with us if you’d like to know more or want to film your experience.

Trustee Changes

Trustee Changes

New Chair for CGF

After many years of guiding us as Chair, Nick Child has stepped down from this position for family reasons, however thankfully he will still play an active part in the Trustee board moving forward.

We are delighted to inform you that the trustees have thus elected a new Chair and also a new Vice Chair, as this position was vacant. Please join me in welcoming Jeff Bolton as Chair, and Jessica Watts as Vice Chair. Jeff has been a trustee with us for 18 months and brings an immense amount of experience, having previously been employed as European Brand Director at Pfizer, a well-known pharmaceutical company. Jess has been a trustee for a number of years, she is a regular participant in our Facebook and virtual support groups and those of you who have attended conventions will know her as an active part of the MPHD group and mum to Skye.

Please join me in giving thanks to Nick for all his efforts, time and commitment as Chair, and to welcoming Jeff and Jess as they step forward.

We would welcome any expressions of interest for new trustees to join us, particularly those with legal and HR experience, although all applications welcome. Please contact Rachel if you are interested in finding out more.



Reclycing Initiative Launched by Novo Nordisk

PenCycle is the exciting new environmental initiative by Novo Nordisk which aims to drastically reduce the amount of waste produced by pre-filled medication pens.

As part of their ‘Circular for Zero’ environmental change policy, they have created a recycling scheme for the pens, which includes their pre-filled growth hormone pen, which will help reduce the 23 million pens currently going into landfill or being incinerated each year.

The plan is simple, instead of placing your empty pen in the sharps bin, take the needle off and put the rest of the pen into the PenCycle box (the needle goes in your sharps bin as usual). The Pencycle box will be delivered to you through your Alcura service and Alcura will take the box away when it is full.

The pens will then avoid landfill and may then be recycled into chairs or light bulbs.

The pilot scheme will run for 6 months initially, in a small number of areas using the Alcura delivery servie. During the pilot Novo Nordisk are looking for a 30% uptake to the scheme, and then will then decide how to roll the programme out further.

To find out more download the PENCYCLE leaflet

or visit the growth hormone pre-filled pen WEBPAGE

CGF Virtual Convention

CGF Virtual Convention

***Exciting News***

We are delighted to announce the dates for our Virtual Convention. It is free to full members this year, so please make sure your membership is up to date.

To become a full member visit: Membership

NICE Faltering Growth Quality Standard

NICE Faltering Growth Quality Standard

NICE has published a quality standard for faltering growth

The faltering growth quality standard covers recognising and managing faltering growth in babies (aged up to 1 year) and preschool children (aged over 1 year). It describes high-quality care in priority areas for improvement. CGF trustee, Rachel Pidcock, was a lay member on the specialist committee and contributed towards the quality standard, the CGF was also a stakeholder in its development.

The standard aims to improve the identification, management and support related to faltering growth and focusses upon four core statements:

  1. Measurement: Babies and preschool children have their measurements plotted on a growth chart if there are concerns about faltering growth. You can download our measuring guidelines at MAKE EVERY CONTACT COUNT
  2. Feeding or eating history: Babies and preschool children have a detailed feeding or eating history taken if there are concerns about faltering growth.
  3. Management Plan: Babies and preschool children have a management plan with specific goals if there are concerns about faltering growth.
  4. Supporting breastfeeding: Mothers are supported to continue breastfeeding if their baby is given supplementation with formula because of concerns about faltering growth.

You find out more about the standard at this link: NICE Faltering Growth Quality Standard

Or, download the pdf HERE


NICE quality standards describe high-priority areas for quality improvement in a defined care or service area. Each standard consists of a prioritised set of specific, concise and measurable statements. NICE quality standards draw on existing NICE or NICE-accredited guidance that provides an underpinning, comprehensive set of recommendations, and are designed to support the measurement of improvement.