November events round-up

November events round-up

November has been a busy month for our team, representing Child Growth Foundation (CGF) at external events across the UK. What a fantastic few weeks it has been!

Earlier this year our charity joined the Helplines Partnership, as we expand our phone and email based Support Line. Sally, our Growth Nurse Specialist, was pleased to join their Annual Conference at the start of this month for a day of talks, workshops and seminars.

It’s been so valuable to join the Helplines Partnership as calls and email to our much needed Support Line increase, to make sure we have a professional, safeguarded and supportive system in place for families getting in touch. The CGF have learnt some great tips and tools at this conference, along with meeting with other wonderful organisations providing valuable helplines.

Next up Sally and Lisa, our Paediatric Endocrine Nurse Specialist, attended the 50th meeting of the British Society for Paediatric Endocrinology and Diabetes (BSPED); a great three days in Manchester focused on the treatment, care and support of children and young people.

Catriona, our Charity Manager, joined Society for Endocrinology’s (SFE’s) BES event in Glasgow, for an interesting and productive three days which provided a brilliant opportunity for the CGF to represent the children and families in the child growth community.

At both BSPED and SfE BES we’ve loved meeting and catching up with other patient organisations, healthcare professionals and other organisations, committees and groups in the field at these welcoming and friendly events!

Later this month Catriona will be heading to Beacon’s London Rare Disease Showcase in London, a jam packed day of talks and presentations on the innovations and advancements occurring in the field of rare diseases, alongside exhibiting with a CGF stand to raise awareness of our work to make a difference wherever growth is a concern.


Anti-Bullying Week: resources and support

Anti-Bullying Week: resources and support

A key theme of this year’s Anti-Bullying Week is Making A Noise About Bullying. As part of this we’re sharing some examples of useful tools resources and activities available to support you and your child(ren).

Kidscape, the bullying prevention charity, have a range of resources such as their Top tips for dealing with bullying and also run ZAP workshops for children impacted by bullying.

Changing Faces have a great section of their website on How to stop bullying because of the way you look, and many of the strategies they share can be applied to children and young people being bullied about their height or other visual differences.

The Anti-Bullying Alliance have a breadth of information and support available, including a dedicated section on their site All about bullying.

Here at Child Growth Foundation we have our Support Line, run by our nursing team Sally and Lisa, who are here to listen and support you on 020 8995 0257 | [email protected].

We are proud to be supporting Anti-Bullying Week, celebrating uniqueness and collectively standing up against bullying.

Image shows a certificate from the Anti-Bullying Alliance certifying that the Child Growth Foundation is committed to making a noise to help stop bullying this Anti-Bullying Week 2023, signed by the Director of the Anti-Bullying Alliance. Image also shows the Anti-Bullying Week 2023 image with wording reading Make a noise about bullying, 13-17th November 2023.
Story books inspiration: Anti-Bullying Week

Story books inspiration: Anti-Bullying Week

The Anti Bullying Alliance share “Research shows that experiencing bullying can have a significant impact on a child’s life well into adulthood”.

Whilst bullying thankfully is not experienced by all in our child growth community, we know it is something families have previously shared with us that some children and young people with a growth condition have sadly faced.

There are some lovely story books that provide a unique and engaging way to address complex emotions and to empower children to understand and help manage their feelings.

Reading storybooks together can allow for open discussions about emotions and mental wellbeing, and can be a platform for parents to check in with their children. Certain story books can often offer a safe space for children to explore their emotions, encountering characters who experience joy, sadness, fear, and anger, helping them understand that these feelings are natural and universal, and creating an opportunity for them to share their thoughts and feelings.

The following story books address body image, body confidence and celebrate differences.

Odd Dog Out by Rob Biddulph | Be Who you Are by Todd Parr | It’s Okay To Be Different by Todd Parr | Mr Big by Ed Vere

Every Child Is Different by Luna James | We All Belong by Nathalie Goss and Alex Goss | Giraffes Can’t Dance by Giles Andreae

Sparrowlegs by Anupa Roper | Your Body Is Awesome by Sigrun DanielsdottirRock What Ya Got by Kerascoët and Samantha Berger

There is also a range of story books The Abilities in Me and their follow up series The Feelings In Me, which include the festive themed The Abilities In Me Save Christmas and The Feelings In Me: Emotions.

If you have any suggestions for books to add or share in the future, please get in touch with us at [email protected].

Please note the links shared above are affiliated links.

Measuring at home infographic launched

Measuring at home infographic launched

It’s International Children’s Growth Awareness Day!

A very special day in our calendar to highlight the importance of child measuring, the support available to those with a diagnosis or those with a concern and the information organisations like us provide.

As part of International Children’s Growth Awareness Day we’re launching our new infographic, Measuring at home.

You can read or download our infographic as a PDF here.

If you’d like to speak to our nursing team please contact our Support Line on 020 8995 0257 / [email protected].

‘What is Sotos Syndrome?’ – infographic launched

‘What is Sotos Syndrome?’ – infographic launched

Today, 6 September, marks this year’s Sotos Syndrome Awareness Day.

An important day in our annual calendar to raise awareness of this genetic overgrowth condition, caused by a change in the gene known as NSD1.

Sotos Syndrome is a variable condition – different people can be affected in different ways, and to different degrees. Common things to look out include rapid growth in childhood, distinctive facial features and learning difficulties, along with less frequent indications in babies and children.

As part of Sotos Syndrome Awareness Day, we are launching our new What is Sotos Syndrome? infographic. Read or download our infographic as a PDF here.

Find out more about Sotos Syndrome at If you’d like to speak to our nursing team with your Sotos queries please contact our Support Line on 020 8995 0257 /

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