Important update regarding Norditropin®

Important update regarding Norditropin®

We have been contacted by the Novo Nordisk team who wanted us to share that there is and will continue to be supply issues over the coming months with their Growth Hormone, Norditropin®.

The advice is to check your current supply of Norditropin® and update your homecare or hospital provider of current stock levels. If you have sufficient supply, no action is needed. Your hospital team are working on patient specific solutions for patients with low or no supply of Growth Hormone. Please only contact your Health Care Professional for further advice if needed or are running low on your Growth Hormone supply. You can call your Paediatric Endocrinologists Secretary, Endocrine Nurse Specialist or Home Care team who are aware of the issues and can advise on patient specific solutions.

Please rest assured that Novo Nordisk is doing everything they can to improve the situation and will keep us updated.

If you are concerned, you are welcome to contact the Turner Syndrome Support Society on 0141 952 8006 or 07947 554587 or e-mail turner.syndrome@tss.org.uk.

The Child Growth Foundation support line is available if you have any concerns you would like to discuss with us on 0208 995 0257 and at info@childgrowthfoundation.org.

Important update from NovoNordisk

Important update from NovoNordisk

*** Please see more recent update here childgrowthfoundation.org/important-update-regarding-norditropin ***

NovoNordisk have made CGF aware of significant supply issues of their products.

NordiFlex® will not be available throughout 2023 and there will only be intermittent supplies of FlexPro® which should improve towards the end of 2023. If you are on any of these products please speak to your healthcare professional who will be able to advise you of your ongoing growth hormone treatment options.

As always, our CGF support line is available if you have any concerns you would like to discuss with us on 0208 995 0257 and at info@childgrowthfoundation.org.

Calling Health Care Professionals – please take our survey!

Calling Health Care Professionals – please take our survey!

Here at the Child Growth Foundation we work with various specialists, health care practitioners and families advocating for early detection, specialist management, treatment and support for all growth conditions.

We’re keen to understand what training healthcare professionals receive for monitoring and measuring infants’, children’s and young people’s growth and to explore potential need and interest.

We have launched a survey on growth measurement training completed in different settings to help us understand the role we can have in promoting and supporting accurate and consistent growth measurements, and whether it would be of benefit for us to deliver future training.

If you are a healthcare professional we’d really appreciate if you could please spare a few minutes to complete our survey.

 

Take our survey
Our new weekly lottery

Our new weekly lottery

Join Child Growth Foundation’s new weekly lottery from £1 a week and be in with a chance to win £25,000!

Child Growth Foundation have joined Unity’s weekly lottery to offer our supporters the chance to win a £25,000 jackpot while supporting our work to improve the lives of children, adults and families affected by child growth conditions.

The CGF Lottery is a weekly lottery costing £1 per entry, per week enabling us to raise much needed funds to help support our charity. The draw is run every Friday and each entry has the chance to win one of four amazing prizes, including the top prize of £25,000!

Join our lottery

You can enter online using Direct Debit or debit card payment or download a PDF form to print out and post with your cheque payment to Unity Lottery’s Freepost address. You can also use the PDF form to join by Direct Debit or debit card payment.

If you need help with joining our lottery please call Unity on 0370 050 9240. You can find out more about the lottery including how it works, prizes and odds, and to read the lottery FAQs on our website here.

Convention 2023: Save the date!

Convention 2023: Save the date!

It was brilliant to see so many of you at our 2022 Convention in September, the first time we have been able to get together for our annual event since 2019.

Thanks so much to everyone who joined us, including our attendees, our speakers, entertainers and volunteers, for making such a great event!

We’re excited to share a save the date for our 2023 Convention, taking place Friday 27th – Sunday 29th October as we once again coming together in Warwick. More details are to follow soon including details of plans for the Friday evening, Saturday daytime, Saturday evening and Sunday morning activities.

We Are Recruiting

We Are Recruiting

Operations, Marketing & Communication Manager

Job Summary

Founded in 1977, the Child Growth Foundation (CGF) is the leading UK charity focusing on the support and management of rare growth conditions affecting children and adults. The purpose of this role is to drive awareness of, and support for, the CGF’s mission to improve the detection, treatment, and management of diverse growth conditions in children – as well as providing support and information for their families – through strategic creative campaigns and ongoing network outreach.

The role’s aim is to consolidate and raise the profile and visibility of the Child Growth Foundation and to position it as the leading UK authority and thought leader on conditions affecting child growth.

About The Role

The Operations, Marketing & Communication Manager will play a key leadership role in the day-to-day operations of the Child Growth Foundation, with responsibility for the charity’s marketing and PR activities, the management of its staff, and its communications with members, medical professionals, and media.

Key Responsibilities

• Develop and ensure implementation of effective marketing plans including day-to-day communications to achieve agreed strategic goals
• Develop and implement fundraising initiatives
• Manage the administration of the charity’s operations including budgetary control, HR, regulatory compliance, and event organisation
• Support the Board of Trustees to arrange meetings, take and distribute minutes, and organise our annual AGM

To Apply

Please send a copy of your CV along with a covering letter, explaining clearly your suitability for the post and how you meet the skills and experiences required for the role, to:

Jeff Bolton Chair of Trustees

Closing Date

The closing date for applications is 11th September 2022

Initial interviews will be held, via Zoom, 12-13 September 2022

Final interview date: tbc

The successful candidate will be required to undergo a DBS check.

Download: JOB DESCRIPTION

Child Growth Foundation

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