Managing Growth Disorders Webinar
Managing growth disorders: integrating technology into a personalised approachYou may have missed the webinar on Tuesday 21st May but you still have the opportunity to watch it now.The webinar discussed non-adherence to GH therapy, why this is a...
Investigating Behaviour in Silver-Russell Syndrome
Investigating Behaviour in Silver-Russell Syndrome: Research Summary by Chloe Lane, Louisa Robinson, Megan Freeth For the past year, we have been conducting a study to investigate behavioural characteristics observed in SRS. The study involved a...
Communication Abilities of Children with Sotos Syndrome
Communication Abilities of Children with Sotos Syndrome: Research Summary by Chloe Lane, Megan Freeth, Louisa Robinson Sotos syndrome is a congenital overgrowth syndrome associated with intellectual disability. Previous research has reported...
Research Funding Update – 2013
Research Funding Introduction The Child Growth Foundation (“CGF” or “Foundation”) aims to “promote and fund research into the causes and cure of growth and endocrine disorders, and publish the results”. The Foundation has been actively pursuing this aim for many years...
Research Update – June 2017
Research update – June 2017 The CGF is currently funding four research projects, two of which will finish this year and the principal investigators have all provided progress reports which appear elsewhere in this newsletter. With increasingly limited financial...
Research Update – December 2017
Research Update – December 2017 With several programmes finishing during 2017 our research portfolio is much reduced, and we are now only funding three active projects. This is largely due to our current financial constraints and we hope to be in a position to award...
Research Funding Protocol
Funding Protocol Funding Policy The CGF aims to promote and fund research into the causes and cure of growth and endocrine disorders. The charity may also consider requests for the purchase of equipment or for financial support to deliver conferences or training...
Links to useful GOSH Leaflets:
Nissens Fundoplication Growth Hormone Therapy Living with naso-gastric tube feeding Living with a gastrostomy Glucagon test
Sotos Syndrome – Summary of Research
Sotos Syndrome: A Summary of the Research – Chloe Lane Review_Summary.pdf http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0149189 Understanding behavioural characteristics in Sotos Syndrome (PDF) Sotos Theory of Mind (PDF) To NICE and Beyond: What’s...
RSS Clinical Scoring System
A prospective study validating a clinical scoring system and demonstrating phenotypical-genotypical correlations in Silver-Russell syndrome: Some of you may know, The Magic Foundation's RSS/SGA R&E Fund, in conjunction with Dr Harbison and Dr Netchine, began an...
