The Child Growth Foundation is proud of the Research projects we have supported in the past and those we are currently involved with. Since 1977, when the charity was launched, it has provided over £1,000,000 in grants to researchers who are working to improve the lives of children, adutls and families affected by child growth conditions. The funding of research is a top mission objective for the CGF and it is committed to providing Research Awards each year.
In this research section you will find relevant news articles and details of Research projects previously supported and currently being undertaken.
If you are planning to undertake research and think the CGF would be interested, please take a look at our Research Funding Protocol.
Particpants Needed for Pituitary Conditions Study
Understanding the Needs of Children with Pituitary ConditionsDr Alyson Norman from the University of Plymouth and Dr Sue Jackson from the University of the West of England are looking for participants in a study of children and young people with pituitary...
Recruits Needed for Sensory Profile Study
New project: Sensory profiles in rare genetic syndromes Researchers at the University of SheffieldWe are currently recruiting parents/caregivers of children (aged 3 – 14 years) with a diagnosis of either Sotos syndrome or Tatton-Brown Rahman syndrome (TBRS) to take...
Managing Growth Disorders Webinar
Managing growth disorders: integrating technology into a personalised approachYou may have missed the webinar on Tuesday 21st May but you still have the opportunity to watch it now.The webinar discussed non-adherence to GH therapy, why this is a...
King’s College London Research Project
Understanding and Improving Treatment Non-Adherence in Paediatric Growth Hormone Deficiency by Selina Graham PhD Researcher Clinical Practice & Medication Use Research Group Institute of Pharmaceutical Science King’s College London Our team here at...
Investigating Behaviour in Silver-Russell Syndrome
Investigating Behaviour in Silver-Russell Syndrome: Research Summary by Chloe Lane, Louisa Robinson, Megan Freeth For the past year, we have been conducting a study to investigate behavioural characteristics observed in SRS. The study involved a...
Communication Abilities of Children with Sotos Syndrome
Communication Abilities of Children with Sotos Syndrome: Research Summary by Chloe Lane, Megan Freeth, Louisa Robinson Sotos syndrome is a congenital overgrowth syndrome associated with intellectual disability. Previous research has reported...
IMAGINE ID Research Opportunity: Can you help?
IMAGINE ID is a research study that aims to increase understanding of children and young people with intellectual disability. It is supported by UNIQUE, the rare chromosome disorder charity. The IMAGINE ID team is very keen to learn more about...
Cordinated Care for Rare Diseases Focus Group
New research study investigating how care should be coordinated for rare conditions Are you 18 or over and a patient with a rare or undiagnosed condition? Are you the parent or carer of a patient with a rare or undiagnosed condition? Would you...
SGA Study News
SGA Metformin Study Was your child born ‘small for dates’? Are they still small for their age? Has their doctor told you they may need growth hormone injections to help them grow? They might be eligible to join a new study, find out more at:...
Research Awards 2018
The Child Growth Foundation has launched ist latest round of Research Award. The Award is for research projects that will directly enhance the health, psychological wellbeing and education of those affected by growth conditions. Grants cover salaries/stipends and...
Research Funding Update – 2013
Research Funding Introduction The Child Growth Foundation (“CGF” or “Foundation”) aims to “promote and fund research into the causes and cure of growth and endocrine disorders, and publish the results”. The Foundation has been actively pursuing this aim for many years...
Research Update – June 2017
Research update – June 2017 The CGF is currently funding four research projects, two of which will finish this year and the principal investigators have all provided progress reports which appear elsewhere in this newsletter. With increasingly limited financial...
Research Update – December 2017
Research Update – December 2017 With several programmes finishing during 2017 our research portfolio is much reduced, and we are now only funding three active projects. This is largely due to our current financial constraints and we hope to be in a position to award...
Research Funding Protocol
Funding Protocol Funding Policy The CGF aims to promote and fund research into the causes and cure of growth and endocrine disorders. The charity may also consider requests for the purchase of equipment or for financial support to deliver conferences or training...
Links to useful GOSH Leaflets:
Nissens Fundoplication Growth Hormone Therapy Living with naso-gastric tube feeding Living with a gastrostomy Glucagon test
Sotos Syndrome – Summary of Research
Sotos Syndrome: A Summary of the Research – Chloe Lane Review_Summary.pdf http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0149189 Understanding behavioural characteristics in Sotos Syndrome (PDF) Sotos Theory of Mind (PDF) To NICE and Beyond: What’s...
RSS Clinical Scoring System
A prospective study validating a clinical scoring system and demonstrating phenotypical-genotypical correlations in Silver-Russell syndrome: Some of you may know, The Magic Foundation's RSS/SGA R&E Fund, in conjunction with Dr Harbison and Dr Netchine, began an...
