Silver-Russell Syndrome Height and BMI Study
New Silver-Russell Syndrome Study Latest research supports the use of growth hormone treatment in Silver-Russell Syndrome for increasing height SDS (standard deviation score). Growth hormone treatment was also associated with lower adult BMI which may reflect improved...
Managing Growth Disorders Webinar
Managing growth disorders: integrating technology into a personalised approachYou may have missed the webinar on Tuesday 21st May but you still have the opportunity to watch it now.The webinar discussed non-adherence to GH therapy, why this is a...
Investigating Behaviour in Silver-Russell Syndrome
The findings from this study indicate that some individuals with SRS have difficulty with autistic traits and these tend to be more common in individuals with SRS mUPD7.
Communication Abilities of Children with Sotos Syndrome
The findings from this research demonstrate that the majority of children with Sotos syndrome struggle with language and communication skills
Research Funding Update – 2013
Research Funding Introduction The Child Growth Foundation (“CGF” or “Foundation”) aims to “promote and fund research into the causes and cure of growth and endocrine disorders, and publish the results”. The Foundation has been actively pursuing this aim for many years...
Research Update – June 2017
Research update – June 2017 The CGF is currently funding four research projects, two of which will finish this year and the principal investigators have all provided progress reports which appear elsewhere in this newsletter. With increasingly limited financial...
Research Update – December 2017
Research Update – December 2017 With several programmes finishing during 2017 our research portfolio is much reduced, and we are now only funding three active projects. This is largely due to our current financial constraints and we hope to be in a position to award...
Research Funding Protocol
Funding Protocol Funding Policy The CGF aims to promote and fund research into the causes and cure of growth and endocrine disorders. The charity may also consider requests for the purchase of equipment or for financial support to deliver conferences or training...
Links to useful GOSH Leaflets:
Nissens Fundoplication Growth Hormone Therapy Living with naso-gastric tube feeding Living with a gastrostomy Glucagon test
Sotos Syndrome – Summary of Research
Sotos Syndrome: A Summary of the Research – Chloe Lane Review_Summary.pdf http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0149189 Understanding behavioural characteristics in Sotos Syndrome (PDF) Sotos Theory of Mind (PDF) To NICE and Beyond: What’s...
RSS Clinical Scoring System
A prospective study validating a clinical scoring system and demonstrating phenotypical-genotypical correlations in Silver-Russell syndrome: Some of you may know, The Magic Foundation's RSS/SGA R&E Fund, in conjunction with Dr Harbison and Dr Netchine, began an...
