Particpants Needed for Growth Hormone Therapy Study

Particpants Needed for Growth Hormone Therapy Study

Particpants Needed for Injectable Growth Hormone Therapy Research

A UK based market research agency called Bryter is looking for UK residents to take part in research studies on the subject of injectable human growth hormone therapy.

They have two studies which will be running in the early part of 2020:

Study 1:

A two week study where participants will download a user friendly App to their smartphone through which they can share their experiences of using injectable human growth hormone therapy. This study is open to parents and caregivers of children using this therapy as well as patients that are managing their own treatment The objective of this study is to gain some insights about the patients’ treatment routines and views of treatments available. There will be a series of questions and short tasks that can be answered using text, pictures or videos and won’t require more than about 10-minutes commitment per day at a time that is convenient. Some participants will then be invited to take part in a follow up in home interview lasting 120-minutes, parts of which will be filmed

Participants will be offered an incentive of £150 as a thank you for completing the app based survey, paid via Amazon voucher or bank transfer. Those participating in the follow up in home interview will receive a further £100. 10% of the incentive (or more if they wish) will be donated to your choice of our registered health charities.

Study 2:

An online survey, roughly 20 minutes in length on the subject of using injectable human growth hormone therapy. This study is open to parents and caregivers of children using this therapy as well as patients that are managing their own treatment Participants would complete the survey on a computer or other connected device.

Participants will be offered an incentive of £30 as a thank you for completing the survey, paid via Amazon voucher or bank transfer. 10% of the incentive (or more if they wish) will be donated to your choice of our registered health charities.

What to do if you are interested in taking part?

To check if you are eligible to participate in one or more of these studies, please click on the link below which will direct you to an online questionnaire where you will answer some questions to test for your suitability to participate. A member of the research team will then contact you with more details:

Eligibility Survey

If you have any questions or concerns at this stage you can contact the Bryter research team direct at the following email address: emelia.smith@bryter-uk.com 

Or you can contact the Child Growth Foundation jenny.child@childgrowthfoundation.org

If you do take part in the studies, could you please mention the Child Growth Foundation, thank you.

Particpants Needed for Growth Hormone Therapy Study

Participants Needed for Pituitary Conditions Study

Understanding the Needs of Children with Pituitary Conditions

Dr Alyson Norman from the University of Plymouth and Dr Sue Jackson from the University of the West of England are looking for participants in a study of children and young people with pituitary conditions.

Primarily, the research aims to investigate the psychological and social functioning of children who have a pituitary condition. The study is focused on individual’s aged between 10-25 and their experiences socially, mentally and physically, their level of decision making in their care and their transition from paediatric based care to adult care. They hope that by conducting this research they will gain an insight into the difficulties that can occur when living with a pituitary condition, help health professionals to better understand their patient’s needs and guide intervention development. They also hope that the information they gain from this research will help young individuals living with a pituitary condition to feel they are able to self-manage their condition, feel empowered and in charge of themselves for the rest of their lives.

If you or your child would be interested in taking part in this study, please contact Dr Norman for more information at:  alyson.norman@plymouth.ac.uk.

Particpants Needed for Growth Hormone Therapy Study

Recruits Needed for Sensory Profile Study

New project: Sensory profiles in rare genetic syndromes

Researchers at the University of SheffieldWe are currently recruiting parents/caregivers of children (aged 3 – 14 years) with a diagnosis of either Sotos syndrome or Tatton-Brown Rahman syndrome (TBRS) to take part in an exciting new research study.

Their previous research with these syndromes has indicated that sensory processing difficulties may be problematic for some children but this has not yet been explored in detail. They are therefore interested in finding out whether there are specific aspects of sensory processing that are common in either of these syndromes and whether these may be associated with other behaviours, such as anxiety and autistic traits. They hope that this research will provide important information regarding sensory processing difficulties in both Sotos syndrome and TBRS which can then be used to help reduce and manage these difficulties, as well as identifying specific behaviours which may occur as a result of sensory processing difficulties.

Taking part in the study involves completing a few questionnaires regarding your child’s sensory processing and associated behaviours. These can either be completed online or hard copies can be sent via the post.

All individuals who participate in the study will receive individualised feedback regarding their child’s sensory profile. If anyone is interested in finding out more about the study or would like to participate, please get in touch with Chloe Lane: chloe.lane@sheffield.ac.uk

Managing Growth Disorders Webinar

Managing growth disorders: integrating technology into a personalised approach

You may have missed the webinar on Tuesday 21st May but you still have the opportunity to watch it now.

The webinar discussed non-adherence to GH therapy, why this is a problem and what interventions can promote adherence for children and their families. Specialists will be presenting and debating on barriers to effective management of growth disorders and which tools are available to implement to improve short- and long-term outcomes.

This webinar is suitable for, but not limed to, clinical paediatric endocrinologists, clinical adult endocrinologists, paediatric endocrine nurses, clinical psychologists, and all other healthcare professionals interested in the management of growth disorders.

To view the recording, click the image above.