Paid External Research Participation Opportunity

MindSight Research are looking to invite people to participate in a research study which is looking at an injection device to administer medication to people diagnosed with one of the following conditions:

• Growth Hormone Deficiency (GHD)
• Turner Syndrome (TS)
• Small for Gestational Age (SGA)
• Prader-Willi Syndrome (PWS)
• Idiopathic Short Stature (ISS)
• Chronic Renal Insufficiency (CRI)

This is study will hopefully lead to better access to the most suitable medical devices for administering Growth Hormone medication.

What would participation involve?

We would be looking for people to participant in a 90 minute in person one to one session, where they will review a device and its instructions and asked specific questions around it. They will be compensated for their time.

Who are we looking to speak to?

People who are aged 18+ and have administered injectable medication for someone with one of the following conditions:

• Growth Hormone Deficiency (GHD)
• Turner’s Syndrome (TS)
• Small for Gestational Age (SGA)
• Prader-Willi Syndrome (PWS)
• Idiopathic Short Stature (ISS)
• Chronic Renal Insufficiency (CRI)

Adolescents aged 12-17 who have been diagnosed with one of the above conditions and have administered injectable medication to themselves (they would attend with a parent/guardian as a chaperone).

Compensation for participation

Participants in this study would receive a monetary amount for their time and contribution. This would be £150 for 90 minutes. This would be paid via bank transfer.

For adolescents, this is the total amount for their participation and chaperone.

This is inclusive of basic travel costs, however we can review this on an individual basis for those travelling further afield.

The organisers will also kindly donate £20 to the CGF where participants note our charity name for where you heard about this research opportunity.

Dates

The dates we are currently looking at are: 22nd July 2024 – 3rd August.

Locations

We have study days booked in the following locations, however if you are interested in participation and live outside of these, please do get in touch as we will be considering additional locations dependent on interest.

London
Birmingham
Bristol
Manchester
Glasgow

How to apply?

If you would like to register your interest to participate please follow the below link: https://eu.panelfox.io/s/9b2ffca0-fc65-4b4b-861d-d3d5dc98e85f

You can also email us: [email protected]

Or if you would prefer to discuss on the phone you can can call us on 0117 462 4700

Mindsight Research have shared the below flyer.