Sotos and TBRS Research Opportunity

Sotos and TBRS Research Opportunity

The University of Sheffield are undertaking a research study looking at sensory profile and behaviour in genetic growth conditions and they are recruiting participants with a child that has Sotos syndrome, Tatton-Brown Rahman syndrome, 16p11.2 deletion syndrome and 16p11.2 duplication syndrome.

You can find out more about the research from the pdf below, or you can contact

Information Sheet_Sensory Profiles in Rare Genetic Syndromes_1.0pdf

Santa Run

Santa Run

Autumn is here. Leaves are turning brown. There is a chill in the air and soon there will be frost on the ground. That can only mean one thing…

Christmas is coming!

So why not challenge yourself to a festive fundraiser and support our incredible work.

It is really simple.

  1. Grab a Santa suit
  2. Set up a fundraising page – Give As You Live
  3. Run

What could be easier? Well, yes, sitting at home watching the telly could be easier but it wouldn’t be as much fun, and it wouldn’t raise any money for the wonderful CGF.

Santa runs up and down the country have been cancelled this year but that shouldn’t stop the fun! You can set your own distance, create your own challenge and spread some Christmas cheer.


CGF Virtual Convention

CGF Virtual Convention

***Exciting News***

We are delighted to announce the dates for our Virtual Convention. It is free to full members this year, so please make sure your membership is up to date.

To become a full member visit: Membership