Convention 2024 booking now open to members!

Convention 2024 booking now open to members!

Convention is back!

Taking place Friday 25th – Sunday 27th October at Delta Hotels Warwick.

We’re so excited for our annual event of learning and support for families affected by rare growth conditions and concerns. 

Online registration is now open to full, paid members.

Members booked to attend convention will receive a free member goody bag at the event. 

With a range of topics and sessions planned for our Saturday daytime, we are working away to bring attendees another packed agenda. Our draft programme is shared here – please note this is subject to change until the final agenda is confirmed. The full speaker line up and event programme will follow soon!

We look forward to seeing familiar faces and welcoming new attendees joining too as we all come together for our special CGF weekend, with extra time planned in this year for those who’d like to network and socialise with others.

Registration will open to non-members from June onwards.

Convention 2024: save the date!

Convention 2024: save the date!

Thank you so much to everyone who joined us at our convention in October. Convention is returning this year, and we’d love to see you there!

 
The event will be taking place Friday 25th-Sunday 27th October at Delta Hotels Warwick with more details and booking page to follow soon.
 
If you have any queries in the meantime please contact our convention planning team at [email protected].
Convention – six weeks to go!

Convention – six weeks to go!

Convention returns in just six weeks time!

We cannot wait to see so many of you there for what is set to be a brilliant event. You can join for the Saturday daytime to attend our various sessions, or alternatively you can make a weekend of it and join for either/both the Friday and Saturday evenings too. And new for 2023 we also have bookable sessions with our nursing team on the Sunday morning.

Booking form

With a range of topics, sessions and conditions covered in our packed agenda, we have a super line up of speakers including parent and patients, alongside Stephanie Yin of Rareminds, Dr Hayley Trower of Cerebra Network, CGF Chair Jeff Bolton, Professor Helen L Storr, Dr Emma Wakeling, Professor Justin Davies, Professor John W Gregory, Martine Monksfield, Professor Stephen Shalet and more!

We run a creche and youth group on the Saturday daytime and places, with limited spaces available at the time of posting. These are now almost full and so if you are looking to join us and require creche and/or youth group spaces we recommend booking soon before spaces are full, through the booking form below.

Booking form

Convention – less than three months to go!

Convention – less than three months to go!

Convention is now under three months away!

 

 We’re so excited for this special event to return 6th-8th October, and to seeing so many of you there. 

Online booking is open with places starting at £15 for Saturday daytime, or make a weekend of it and join our Friday and Saturday evening activities too at Delta Hotels Warwick. Plus new for this year we’ll have bookable slots with our nursing team on the Sunday morning.

With talks on conditions themselves, the emotional impact of growth conditions, tips for appointments and more, we’ve got a great event lined up for learning, socialising and sharing.  

Convention 2023: Save the date!

Convention 2023: Save the date!

It was brilliant to see so many of you at our 2022 convention in September, the first time we have been able to get together for our annual event since 2019.

Thanks so much to everyone who joined us, including our attendees, our speakers, entertainers and volunteers, for making such a great event!

We’re excited to share a save the date for our 2023 convention, taking place Friday 6th – Sunday 8th October as we once again coming together in Warwick. More details are to follow soon including details of plans for the Friday evening, Saturday daytime, Saturday evening and Sunday morning activities.

Visit our convention page for more details and to soon book online to join us.

Virtual Convention 2020

Virtual Convention 2020

Virtual Convention 2020

In October we delivered our (un)usual annual convention, which means that traditionally, on these pages, we bring you gloriously amazing pictures of fancy dress frivolity featuring superheroes, Disney characters, festival hippies and so much more. This year, we bring you a zoom meeting…

Yes, it was different. Yes, it was COVID and yes, it was lockdown. But we made the best of it! We were actually very nervous about it. We had some fabulous speakers and presentations lined up. We had the wonderful membership family ready to engage. We had an army of volunteer support. But what if the technology lets us down? What if broadband breaks? What if Zoom melts?

What if Neil sent out the wrong link for the first day of the Convention and only discovered the error half an hour before it was due to start! Surely, that would never happen – erm, well yes it did, and he is still very embarrassed about it!

That hitch aside it all went swimmingly well. All three days were thoroughly engaging, interesting and informative. We shouldn’t really be surprised. The Child Growth Foundation is built on connecting parents & families with each other and with the very best experts in the field. And that is what we did again. Fantastic speakers but more importantly all those who attended came wanting to learn, wanting to ask, and wanting to share. We all agreed the lack of the physical togetherness was a shame, but do you know what – it still felt a very close and intimate day, it felt like we all connected and it turned out to be a very personal, and enjoyable few days.

A Convention, but not as we know it…

Saturday 24th October – SRS/IUGR/SGA

The first day covered SRS/IUGR and SGA and was kicked off by a live Q&A session with Dr Justin Davies, that could probably have gone on all day! It didn’t, which is just as well as there were some fabulous talks lined up. Dr Helen Storr provided an update on the GRASP project findings and Dr Deborah Mackay gave us an overview of genetic diagnosis of SRS and SGA, as well as an update on the SRS research study the CGF is currently funding. We broke for lunch, and some left their cameras on so we could see what they were having! Before we all returned for an afternoon that explored adult health issues in SRS with Dr Karen Temple and cognition and behaviour issues in SRS with Dr Megan Freeth. The day finished with a group chat.

The support from the speakers was fantastic, some were recorded and some were live and we have to say a huge thank you to Dr Temple who was actually on holiday, well coming home from holiday, and following her recorded presentation came on live from her car on the motorway (she wasn’t driving!) to answer questions. It was amazing of her to give that time to us, and we were delighted to see her get home safely and be welcomed home by a very excited puppy!

Dogs were quite a theme of the three days, with many zoom-bombing pooches stealing the limelight of the talks!

Saturday 31st October – GHD & MPHD

Day two covered GHD and hypopituitarism and again, was very well attended. It was opened by the wonderful Dr Harshini Katugampola with the fabulously titled presentation “It Takes Two to Tango” which covered growth and puberty.

This was followed by a live, and very hands on, presentation by Endocrine Specialist Nurse, Claire Westcott, who talked about emergency adrenal crisis, sick day rules and management. This session walked us through how to inject, with live demonstrations involving oranges and out of date medical equipment! The oranges felt no pain from the injections but sadly, the medication was out of date so no discernible growth benefit was recorded!

After lunch Dr Helena Gleeson provided a much-needed guide to transitioning to adult services and after that Nurse Specialist Helen Smart gave a thorough overview of management and treatment options for GHD & hypopituitarism . The day was again finished off with a group chat that ended with an impromptu musical performance!

Saturday 14th November – Sotos Syndrome

The third day of our convention focussed on Sotos Syndrome and opened with a presentation by Dr Megan Freeth on cognition and behaviour issues. After a short break we returned to hear a super introduction to Sotos Syndrome from Dr Kate Tatton-Brown, followed by many, many questions.

Then came the amazing double act of Dr Alison Foster and Dr Alice Welham who took us through Sotos syndrome the pre-teen years and then Sotos syndrome the adult years. It was a really well-developed programme that gave attendees much opportunity to discuss concerns, and the speakers hung around throughout, answering questions and providing guidance. The third day was incredibly well attended and the group chat to finish the event went on for some time with a great deal of bonding and peer support. We received a lot of offers of help to build up our Sotos support network and we are incredibly grateful and look forward to what we can build.

Child Growth Foundation

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