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Share your views and ideas with our Youth Ambassadors!

Share your views and ideas with our Youth Ambassadors!

by | Jun 19, 2024 | News, Youth Ambassadors

Share your views and ideas!

Our fantastic team of Youth Ambassadors had their first meeting recently – it was wonderful to get this brilliant programme started.

The Youth Ambassador Programme is for young people aged 16-25 years old who have, or had experience of, a growth condition or concern who are taking on this voluntary role to help make sure that young people’s voices are heard on what matters to them.

There were some brilliant ideas discussed at the first meeting, and our Youth Ambassadors would love to hear from you, fellow young people, with your views and ideas on what you’d like to see the team explore and develop, and for them to work with the CGF to introduce for fellow young people.

To add your thoughts visit our Insta story in our highlights, pop them in the comments box here, or email us at [email protected].

To find out more about the Programme or to apply to be a Youth Ambassador, visit our Youth Ambassador page.

Growth Hormone Injection Device – Paid External Research Study

Growth Hormone Injection Device – Paid External Research Study

by | Jun 17, 2024 | News, Opportunities: external studies, surveys and research projects, Research

Paid External Research Participation Opportunity

MindSight Research are looking to invite people to participate in a research study which is looking at an injection device to administer medication to people diagnosed with one of the following conditions:

• Growth Hormone Deficiency (GHD)
• Turner Syndrome (TS)
• Small for Gestational Age (SGA)
• Prader-Willi Syndrome (PWS)
• Idiopathic Short Stature (ISS)
• Chronic Renal Insufficiency (CRI)

This is study will hopefully lead to better access to the most suitable medical devices for administering Growth Hormone medication.

 

What would participation involve?

We would be looking for people to participant in a 90 minute in person one to one session, where they will review a device and its instructions and asked specific questions around it. They will be compensated for their time.

 

Who are we looking to speak to?

People who are aged 18+ and have administered injectable medication for someone with one of the following conditions:

• Growth Hormone Deficiency (GHD)
• Turner’s Syndrome (TS)
• Small for Gestational Age (SGA)
• Prader-Willi Syndrome (PWS)
• Idiopathic Short Stature (ISS)
• Chronic Renal Insufficiency (CRI)

Adolescents aged 12-17 who have been diagnosed with one of the above conditions and have administered injectable medication to themselves (they would attend with a parent/guardian as a chaperone).

 

Compensation for participation

Participants in this study would receive a monetary amount for their time and contribution. This would be £150 for 90 minutes. This would be paid via bank transfer.

For adolescents, this is the total amount for their participation and chaperone.

This is inclusive of basic travel costs, however we can review this on an individual basis for those travelling further afield.

The organisers will also kindly donate £20 to the CGF where participants note our charity name for where you heard about this research opportunity.

 

Dates

The dates we are currently looking at are: 22nd July 2024 – 3rd August.

 

Locations

We have study days booked in the following locations, however if you are interested in participation and live outside of these, please do get in touch as we will be considering additional locations dependent on interest.

London
Birmingham
Bristol
Manchester
Glasgow

 

How to apply?

If you would like to register your interest to participate please follow the below link: https://eu.panelfox.io/s/9b2ffca0-fc65-4b4b-861d-d3d5dc98e85f

You can also email us: [email protected]

Or if you would prefer to discuss on the phone you can can call us on 0117 462 4700

Mindsight Research have shared the below flyer.

 

‘Tops tips when approaching your GP’ infographic launched

‘Tops tips when approaching your GP’ infographic launched

by | Jun 5, 2024 | From Parents, For Parents, Infographics, Information, News

Our latest Top Tips: From Parents, For Parents infographic is here!

You can view this as an image below, or read and download as a PDF here.

Thanks so much to everyone who contributed their own top tips for approaching your GP with a concern about your child’s growth. This infographic is part of a growing range of Top Tips: From Parents, For Parents, along with our wider range of infographics on important topics for those with a growth condition or those with a concern.

See our infographics range

If you’d like to speak to our nursing team please contact our Support Line on 020 8995 0257 |  [email protected] | childgrowthfoundation.org/support

External paid study opportunity: For children who use an injection device to administer medication to treat a health condition

External paid study opportunity: For children who use an injection device to administer medication to treat a health condition

by | May 23, 2024 | News, Opportunities: external studies, surveys and research projects

Intelligent Fieldwork are working with their client, a health communications company, on a study for children who use an injection device to administer medication to treat a health condition.

They are looking to speak with children and their parent/guardian who may be interested in taking part in this face to face usability study (a usability study involves participants reading and following a set of instructions for a medical device and providing their feedback).

They want to ensure that a new information leaflet can be understood and followed by everyone, including children of all ages and reading ability. This is not a clinical study and you nor your child would be required to take any medication, just to give your time and opinions.

More details

Intelligent Fieldwork would like to speak to children age 7-12 years (or those aged 6 who are turning 7 this summer) who use an injection device to administer medication to treat a health condition.

Interviews are taking place across the UK and will last for 60-minutes for which participants will receive £100. The accompanying parent/guardian will receive a £30 chaperone fee, and there is a small travel contingency for people that need to travel.

The organisers will also kindly donate £20 to the CGF where participants note our charity name in the ‘where did you hear about this study’ box in the questionnaire.

To take part

To find out more and to take part please email [email protected] or visit the questionnaire here.

Intelligent Fieldwork have also shared the below information flyer.