Measuring at home infographic launched

Measuring at home infographic launched

It’s International Children’s Growth Awareness Day!

A very special day in our calendar to highlight the importance of child measuring, the support available to those with a diagnosis or those with a concern and the information organisations like us provide.

As part of International Children’s Growth Awareness Day we’re launching our new infographic, Measuring at home.

You can read or download our infographic as a PDF here.

If you’d like to speak to our nursing team please contact our Support Line on 020 8995 0257 / [email protected].

‘What is Sotos Syndrome?’ – infographic launched

‘What is Sotos Syndrome?’ – infographic launched

Today, 6 September, marks this year’s Sotos Syndrome Awareness Day.

An important day in our annual calendar to raise awareness of this genetic overgrowth condition, caused by a change in the gene known as NSD1.

Sotos Syndrome is a variable condition – different people can be affected in different ways, and to different degrees. Common things to look out include rapid growth in childhood, distinctive facial features and learning difficulties, along with less frequent indications in babies and children.

As part of Sotos Syndrome Awareness Day, we are launching our new What is Sotos Syndrome? infographic. Read or download our infographic as a PDF here.

Find out more about Sotos Syndrome at www.childgrowthfoundation.org/conditions/sotos-syndrome. If you’d like to speak to our nursing team with your Sotos queries please contact our Support Line on 020 8995 0257 /
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Over £1,000 raised by Cellnex UK team

Over £1,000 raised by Cellnex UK team

A huge well done and thank you to the Site Negotiation and Legal team within Cellnex UK who raised over £1,000 walking, running, cycling and swimming the distance from Lands End to John O’Groats throughout the month of July in support of the CGF – incredible!

The team’s Delivery Manager Jess Dentry’s daughter Maeve, now two and a half years old, was diagnosed with Silver-Russell Syndrome at eight months old.

Jess shared the below on her JustGiving page:

“The Child Growth Foundation is a charity close to my heart. My daughter Maeve was diagnosed with Russell-Silver Syndrome (RSS) when she was 8 months old, after months of worry about her not gaining weight or growing at a normal rate. Having the diagnosis and the information available from the Child Growth Foundation answered so many of our endless questions and worries and put me in contact with so many other wonderful parents of children affected with rare growth conditions.”

Thanks so much to Jess and team for this amazing support inspired by Maeve! You can see their fundraising over on the team’s JustGiving page www.justgiving.com/page/cellnex-child-growth-foundation.

   

Convention – six weeks to go!

Convention – six weeks to go!

Convention returns in just six weeks time!

We cannot wait to see so many of you there for what is set to be a brilliant event. You can join for the Saturday daytime to attend our various sessions, or alternatively you can make a weekend of it and join for either/both the Friday and Saturday evenings too. And new for 2023 we also have bookable sessions with our nursing team on the Sunday morning.

Booking form

With a range of topics, sessions and conditions covered in our packed agenda, we have a super line up of speakers including parent and patients, alongside Stephanie Yin of Rareminds, Dr Hayley Trower of Cerebra Network, CGF Chair Jeff Bolton, Professor Helen L Storr, Dr Emma Wakeling, Professor Justin Davies, Professor John W Gregory, Martine Monksfield, Professor Stephen Shalet and more!

We run a creche and youth group on the Saturday daytime and places, with limited spaces available at the time of posting. These are now almost full and so if you are looking to join us and require creche and/or youth group spaces we recommend booking soon before spaces are full, through the booking form below.

Booking form

Our autumn newsletter is here!

Our autumn newsletter is here!

CGF News Autumn 2023

With autumn fast approaching our latest newsletter has now been published featuring stories from the child growth community, updates from familiar faces, studies, surveys and medical community news, ways to get involved, and information about our support.

You can read this in magazine style on Issuu or you can read and download the newsletter PDF.

Read in magazine style on Issuu  Read and download as PDF

News delivered to your door

Child Growth Foundation members receive a printed copy of our newsletter ‘CGF News’ delivered straight to their door as part of their membership benefits.

Find out more about membership

Share your story with the child growth community

If you have a story, update or news to share, we’d love to hear from you! We are always keen to share stories to raise awareness and to support others in our community.

Email us at [email protected].

Child Growth Foundation

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