Behavioural and Emotional Outcomes in individuals with Neurodevelopmental Disorders (BEOND) Study

The BEOND study  is examining a range of clinical outcomes in people with neurodevelopmental disorders, including growth conditions associated with intellectual disability. The BEOND study was previously open to families with a growth condition and intellectual disability from 2023 to 2024, and will be open again in spring 2026.

Participants are/will be parents/caregivers of people with growth conditions associated with intellectual disability – completing a battery of questionnaires via an online survey or posted paper pack. These questionnaires take about 60 minutes to complete. All families will receive a personalised feedback report, summarising their responses to the survey, as well as an Amazon voucher after completing the survey. All families’ data will remain anonymous and confidential.

The study team have shared a summary of the data that they collected and what they did with this data, which you can see below as images, or as a PDF report here.