The RARE Youth Revolution has begun
RARE Revolution Magazine have announced the launch of the RARE Youth Revolution movement, along with its new online home at rareyouthrevolution
This online platform is giving a voice to the youth of RARE, sharing news and views on a fresh and innovative, accessible platform, with content that is created by children and young people affected by rare disease—FOR children and young people affected by RARE, ensuring their voices are heard.
A dedicated online rare disease platform for young people
There are many adult communities and support groups in the rare disease space, but children and young people have struggled to find an outlet, and following the success of their #RAREYouthProject pilot in 2018 they have been working hard to address this inequality and fill that void.
The website is a focal point for this movement, empowering young people to share their experiences through storytelling, be it writing, video, art or audio, and to enable them to become connected to what is happening in the rare world—sharing news and events, science and technology, charity and advocacy, in an age appropriate way through the voices that matter to them—theirs!
Join the RARE Youth Revolution
Would you like to join our RARE Youth team to help guide the direction of this movement?
Perhaps you’re an aspiring blogger or vlogger and would like to contribute your story?
If you are then drop the youth editor, Daisy Marriott an email at firstname.lastname@example.org