Select Page

RARE Youth Revolution

The RARE Youth Revolution has begun

RARE Revolution Magazine have announced the launch of the RARE Youth Revolution movement, along with its new online home at rareyouthrevolution

This online platform is giving a voice to the youth of RARE, sharing news and views on a fresh and innovative, accessible platform, with content that is created by children and young people affected by rare disease—FOR children and young people affected by RARE, ensuring their voices are heard.

A dedicated online rare disease platform for young people

There are many adult communities and support groups in the rare disease space, but children and young people have struggled to find an outlet, and following the success of their #RAREYouthProject pilot in 2018 they have been working hard to address this inequality and fill that void.

The website is a focal point for this movement, empowering young people to share their experiences through storytelling, be it writing, video, art or audio, and to enable them to become connected to what is happening in the rare world—sharing news and events, science and technology, charity and advocacy, in an age appropriate way through the voices that matter to them—theirs!

Join the RARE Youth Revolution

Would you like to join our RARE Youth team to help guide the direction of this movement?

Perhaps you’re an aspiring blogger or vlogger and would like to contribute your story?

If you are then drop the youth editor, Daisy Marriott an email at [email protected]

www.rareyouthrevolutionmagazine.com

You may also like…

CGF News Winter 2025

CGF News Winter 2025

A new year is upon us, and our latest newsletter is here! Filled with updates, personal stories, medical community...

BEOND Study summary report

BEOND Study summary report

 Behavioural and Emotional Outcomes in individuals with Neurodevelopmental Disorders (BEOND) Study The BEOND study  is...

Our SEA LIFE Manchester Meet Up

Our SEA LIFE Manchester Meet Up

Fin-tastic Meet Up at SEA LIFE Manchester In November we hosted our final Meet Up of 2025, and had such a wonderful...