Somatrogon (Ngenla) – Weekly Growth Hormone Therapy
Video Q&A with Rumeysa Gelgi, Weaver syndrome advocate and multiple Guinness World Record holder.
In support of our convention, Rumeysa Gelgi joined a video Q&A with our Chair of Trustees Jeff Bolton.
The session was really well received at convention and we’ve since had requests for it to be shared for attendees to watch again, and also to share with our wider community to help raise vital awareness and understanding of Weaver syndrome.
Many thanks to Rumeysa who has allowed us to share this video Q&A with you all – click play below to watch it, or head to our YouTube channel here.
You may also like…
Important notification: Shortage of Hydrocortisone Sodium Phosphate injections
It has been bought to our attention that there is currently a shortage of Hydrocortisone Sodium Phosphate injections,...
Virtual Cuppa & Chat: 6 March 2025
Join us for a cuppa and a chat! Join our next evening Virtual Cuppa & Chat with our nurses Sally & Lisa on...