In March the CGF attended the RCPCH (Royal College of Paediatrics and Child Health) three day conference in Glasgow. 

Sally from the CGF team was really grateful to share a space with Harlow Solutions who produce (amongst many things) the ‘red book’, also known as the Personal Child Health Record (PCHR).

RCPCH are the membership body for paediatricians in the UK and around the world. The theme for this year’s conference was ‘Future child health: innovate, integrate and inspire’. This 2025 event also featured a dedicated area and presentation theatre on childhood rare diseases.

The event was a brilliant opportunity to share our materials and talk to paediatricians from across the UK. It was also fantastic to connect with the other patient support groups in attendance, many of whom we have never met or worked with before. We particularly valued sharing ideas of how we support our rare community and identifying ways we can collaborate to deliver greater impact, reaching as many families as possible and provide the most appropriate, meaningful support.

Thank you Harlow for inviting us to join you,  and to the RCPCH for having us!