I started working with the CGF in May 2023 as a Paediatric Endocrine Nurse Specialist (PENS). I feel very lucky to have been given the opportunity to undertake this new and exciting role for the CGF.

I have always worked with children, young people and their families starting with supporting children with autism and moderate to severe learning difficulties in a residential school setting. I moved into nursing in 2009 and I knew immediately that it was the career for me. I work part time with the CGF and also continue my role as a PENS at a local hospital.

I live in Nottinghamshire with my husband and two children. When I’m not working I enjoy crafts, going on family walks or to the agility field with our dog and ice skating with my daughters.

I joined the CGF in June 2021. I’m a paediatric nurse with over 20 year’s experience in various hospital and community settings.

Alongside this role, I continue to work part time on the general paediatric ward at my local hospital.

I am passionate about improving the healthcare journey for both the child and family through education and joint working, particularly those with rare conditions.

I am married to Jamee, we have two children – Otto and Frieda. I love to cook, exercise and escape to the allotment!

I started working for the CGF in May 2016.

I first contacted the CGF regarding by son. Samuel was born prematurely, and was IUGR/SGA. At four years old he was diagnosed with Growth Hormone Deficiency.

I have two boys, Samuel and Sebastian, and am married to Suman.

A BSc (Hons) and MBA graduate from Welsh universities, Jeff joined the pharmaceutical industry in 1990. Jeff first worked for Janssen-Cilag, where he performed a range of commercial and marketing management roles.

Jeff joined Pfizer in 2002 as Senior Brand Manager in the Endocrinology Team and transitioned into a European marketing role in 2006. Jeff became European Brand Director in 2010. Jeff left Pfizer in 2016 to start his own consultancy company.

Jeff has been involved with, and passionate about, growth conditions for over 20 years, and has won numerous awards, both national and international, for his role in developing campaigns and support information and materials for families affected by growth conditions. Jeff was the European lead for the development of the first growth prediction tool, iGRO, which was sponsored by Pfizer, and has since been rolled out in more than twenty-five countries.

Jeff has been a trustee of the Child Growth Foundation for over two years and became their Chair in 2022. Jeff also represents the CGF on the ICOSEP Steering Committee. 

I am married with four children. Our daughter Skye has evolving panhypopituitaryism. She was diagnosed at two with GHD, lost cortisol at the age of seven; and recently lost her thyroid.

We have found her condition very hard at times but discovered so much support through the CGF.

In my spare time I like to make chocolate and bake and I have recently started knitting.

I have been a member of the CGF for 18 years, since my daughter, Katie, was diagnosed with Sotos syndrome. I wanted to become more involved with the charity this year to help raise awareness of this overgrowth syndrome and to support parents and families.

I have a great deal of experience and knowledge of Sotos syndrome and of parenting a child with the condition and am looking forward to helping the CGF develop more services and support for families affected by that condition.

I work at a local primary school with children with learning difficulties and I’m also a governor within the school. I am really excited to be part of the Trustee Board and cannot wait to get started.