Annual Convention 2019

Annual Convention 2019

Annual Convention 2019

The 2019 CGF Annual Convention was held at the end of October at the Warwick Hilton, just outside Stratford-Upon-Avon. It was a wonderful success and with the theme of ‘festival’, a glam-tabulous time was had by all.

The weekend was very well attended, with numbers slightly up on the year before, and we were fortunate enough to have a fantastic array of health professionals with a wealth of knowledge and experience behind them, including: Dr Kate Tatton-Brown who gave an overview on Tatton-Brown Rahman Syndrome, Dr Sue Jackson delivering a presentation on pituitary research with young people, Dr Trevor Cole gave an overview of Sotos Syndrome and Dr Reena Perchard who updated attendees on the BabyGRO study.

Other highlights included a joint presentation by Dr Alice Welham and Dr Chloe Lane on Emotional Difficulties with Sotos Syndrome and a presentation by Dr Claire Higgins on a psychological approach to eating difficulties. On the Saturday afternoon there was a talk by IPSEA who delivered on the cross-condition topic of ECHP and Education Law. The Southampton team, including, Professor Karen Temple, Dr Justin Davies & Professor Deborah Mackay, updated the SRS/SGA group on the latest developments.

The whole line up led to a very well-rounded series of talks and presentation, which hopefully meant something for everyone.

The children were taken good care of with creche facility and the gaming room. The theme in the evening was very popular with many children and adults getting into the festival spirit. Tom and Michaela put on an entertaining show for us and much dancing was done!

Feedback

“it was a really great event and amazing speakers, we did enjoy our time thank you”

“First time there I found it really interesting and helpful. Felt really welcomed and not alone.”

“A wonderful, informative, occasion filled with positivity and joy. Thank you.”