At the Child Growth Foundation we are often contacted by organisations, healthcare professionals and academic institutions who are conducting surveys, studies and research projects, to drive progress and advancements relating to our child growth community.
These can range from rare disease questionnaires, projects looking at related neurodevelopmental factors and research in to treatments for growth conditions, and many more.
Where appropriate, we will share these with our community on our website, our social media channels, our bi-annual newsletter, and/or by email.
Alongside sharing opportunities to take part, we also share updates we receive with outcomes of projects, which have often been made possible thanks to the kind contributions our community make by taking part.Â
Opportunities to take part in external studies, surveys and research projects
GENROC study
GENROC study opens for recruitment in the UK: Improving the treatment for children with GENetic Rare disease: Observational Cohort study This study has been set up by Dr Karen Low, a consultant clinical geneticist based in Bristol. Dr Low is particularly...
Mental Health Resource Project
The Child Growth Foundation wants to provide more psychological support for young people living with a growth condition. As part of this ongoing work we have launched a project to find out more about young peoples’ experiences of mental health and living with an...
Updates and outcomes of external studies, surveys and research projects
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Do you have a study, survey or research project to share?Â
If you are the organiser of a study, survey or research project you would like to share with our community, please contact our team at [email protected] and we can share our request form with you to complete.
Please note that as a part time team with limited capacity we have our communications scheduled in advance and so are unfortunately unable to accommodate last minute requests.
For any studies, surveys and/or research projects with a fixed end date for completion please give 2-4 weeks’ notice for us to share with our community and for our community to have sufficient time to complete.Â

