News and Media
Here you'll find our latest news stories, articles and updates.
If you have any media queries please get in touch with our friendly team.
Above image courtesy of Dignum Photography.
New resource – A parent carer guide to concerns about a child’s growth
Our new resource 'A parent carer guide to concerns about a child's growth' is now available! Containing important...
New resource – Healthcare Organiser
Our new Healthcare Organiser is here! We've produced this organiser to be used by families wishing to keep a personal...
Family fun at Noah’s Ark Zoo Farm
Meet Up: July 2024 Earlier this month families joined together at Noah's Ark Zoo Farm for a lovely day out, for our...
Adrenal Insufficiency Support Packs now available!
We are delighted to share that our Adrenal Insufficiency Support Pack is here and available to order. The pack...
Share your views and ideas with our Youth Ambassadors!
Share your views and ideas! Our fantastic team of Youth Ambassadors had their first meeting recently - it was...
Growth Hormone Injection Device – Paid External Research Study
Paid External Research Participation Opportunity MindSight Research are looking to invite people to participate in a...
Virtual Cuppa & Chat: 3 July 2024
Join our next evening Virtual Cuppa & Chat with our nurses Sally & Lisa on Wednesday 3 July, 7-8pm on Zoom....
‘Tops tips when approaching your GP’ infographic launched
Our latest Top Tips: From Parents, For Parents infographic is here! You can view this as an image below, or read and...
External paid study opportunity: For children who use an injection device to administer medication to treat a health condition
Intelligent Fieldwork are working with their client, a health communications company, on a study for children who use...
Research project: What are the neurodevelopmental, behaviour and feeding issues in children and young people with Silver-Russell syndrome?
Researchers at Aston University are working with Birmingham Women’s and Children’s Hospital to better understand the...
6th July Meet Up: Noah’s Ark Zoo Farm, North Somerset
Our next Meet Up event will be at Noah's Ark Zoo Farm, Clevedon, North Somerset on Saturday 6th July and we'd love you...
CGF attends 2024 ICOSEP Meeting
Last week our Chair Jeff and Vice Chair Jessica represented the CGF at the 2024 ICOSEP Meeting. ICOSEP, which stands...
