The Cerebra Network for Neurodevelopmental Disorders, is headed by four researchers and is based across four UK academic research sites. The Cerebra Network works to improve the lives of individuals with severe and complex needs and improve outcomes for individuals and their families.
The Cerebra Network (formerly The Cerebra Centre) has produced numerous guides, resources and research findings for professionals, along with parents and carers www.findresources.co.uk.
Pulse 365 is a platform for GPs, providing CPD anytime, anywhere across events, webinars and e-learning modules.
Short Stature – identifying which children to investigate and refer
A session hosted on Pulse 365 led by Professor Helen L Storr covering the below content:
- Improve the recognition and diagnosis of growth disorders in children
- Standardise current clinical practice
- Promote early diagnosis and timely referral of growth disorders
Assessment of childhood short stature: a GP guide
Article published in the British Journal of General Practice outlining how to undertake a targeted assessment in a child presenting with short stature available here.
Inequalities in the assessment of childhood short stature
A paper has been published in the British Journal of General Practice highlighting the varied inequalities in the assessment of childhood stature, including systematic gender and racial biases.
As the paper shares: “early detection of short stature is key to optimising health outcomes, however, there are significant social disparities in the assessment of childhood short stature”.
You can read the full paper here.
The paediatric endocrine nurse specialist role: supporting growth hormone adherence
Recording of a live webinar by Paediatric Endocrine Nurse Specialist Chris Davies on the role of supporting growth hormone adherence: The paediatric endocrine specialist nurse role – ‘supporting growth hormone adherence.
NICE quality standard: Transition from children’s to adults’ services
This quality standard covers the period before, during and after a young person moves from children’s to adults’ services in all settings where transitions from children’s to adults’ health or social care services take place. It covers all young people (aged up to 25) using children’s health and social care services who are due to make the transition to adults’ services. This includes young people with mental health problems, disabilities and long-term, life-limiting or complex needs, rare diseases and those in secure settings or under the care of local authorities. It describes high-quality care in priority areas for improvement.
The Child Growth Foundation are one of a number of supporting organisations of this quality standard.