Annual Convention 2020

Annual Convention and AGM                     

2020 Convention Cancelled.

Given the severity of the current COVID-19 pandemic, and after much deliberation, we have made the decision to cancel this year’s CGF Annual Convention, that was to have taken place from 2nd to 4th of October in Warwick.

It is still unclear exactly what will happen in the weeks and months ahead but with talk of social distancing lasting for some time, we feel it would be unwise to go ahead. Our members and families are very important to us and your health is the top priority. It saddens us to bring this news, but we know it is the right decision and we hope you understand.

If you have already booked your place at the convention, we will be in touch soon and will refund your payment as soon as possible. If you have already made your hotel reservations, please remember to cancel. Please be aware though, that many of the hotel staff are not currently working, so we would recommend leaving this for a few weeks, and you can then cancel directly with the hotel staff, otherwise your call will probably go to central reservations.

We are looking to host some virtual meetings in October and are currently engaging with health professionals to develop an online programme. We will update this page nearer the time with details.

We also hope to hold a social event sometime in early 2021 and will let you know as soon as we can if this will be possible.

Our thoughts and best wishes are with you all at this time and we look forward to seeing many of you in 2021.

Thank you

Annual Convention & AGM – 2019

2019 Annual Convention write-up, coming soon!

Annual Convention & AGM – 2018

The 2018 convention was attended by many parents, children and professionals, and throughout the day on Saturday, we had a vast array of eminent speakers, including Prof Karen Temple, Prof Deborah Mackay, Dr Emma Wakeling, Dr Assunta Albanese, Dr Lee Hudson, Dr Trevor Cole, Dr Kate Tatton Brown, Dr Megan Freeth, Dr Chloe Lane, Dr Alice Welham.

We are very fortunate to have some of the best healthcare professionals, endocrinologists and geneticists in the world and they give up their valuable time to come to our annual convention.

“I always come away with more knowledge than I came with”

Many of the professionals spend the whole day with us and talk to parents on an individual basis, offering their expertise in a very informal and relaxed setting. They all thoroughly enjoy their day with us and quite often learn as much from our members as our members learn from them.

We had a record amount of children attending this year and the youth group continues to grow in popularity, with many of the young people making new friends as well as enjoying meeting up with old friends.

At the end of a very hectic day, it was time to relax, have a drink and enjoy the company of others who understand what you are or have been through. There is nothing like the support of another parent, when you tell them about your struggles and they say, “that’s exactly what happened to us!” We are already planning our next convention, and as always, it will be great to see all our CGF friends again, as well as greeting new ones.

“Very well organised and very beneficial to our family”

Although the convention is for members of the CGF, we welcome new members from anywhere in the world and at last year’s convention, we welcomed members overseas again. What remains clear is that patient support groups and the help and advice patients receive from these groups, as well as other parents, cannot be underestimated. The same is true of healthcare professionals, who are increasingly relying on patient support groups to help their patients, which can only be considered as great progress for us all.

 

“an all round great weekend”

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