News

Managing Growth Disorders Webinar

Managing growth disorders: integrating technology into a personalised approach Webinar: Tuesday 21st May This is an expert-led live webinar discussing non-adherence to GH therapy, why this is a problem and what interventions can promote...

King’s College London Research Project

Understanding and Improving Treatment Non-Adherence in Paediatric Growth Hormone Deficiency by Selina Graham PhD Researcher Clinical Practice & Medication Use Research Group Institute of Pharmaceutical Science King’s College London Our team here at...

Investigating Behaviour in Silver-Russell Syndrome

Investigating Behaviour in Silver-Russell Syndrome: Research Summary by Chloe Lane, Louisa Robinson, Megan Freeth For the past year, we have been conducting a study to investigate behavioural characteristics observed in SRS. The study involved a...

Communication Abilities of Children with Sotos Syndrome

Communication Abilities of Children with Sotos Syndrome: Research Summary by Chloe Lane, Megan Freeth, Louisa Robinson Sotos syndrome is a congenital overgrowth syndrome associated with intellectual disability. Previous research has reported...

IMAGINE ID Research Opportunity: Can you help?

IMAGINE ID is a research study that aims to increase understanding of children and young people with intellectual disability. It is supported by UNIQUE, the rare chromosome disorder charity. The IMAGINE ID team is very keen to learn more about...

Cordinated Care for Rare Diseases Focus Group

New research study investigating how care should be coordinated for rare conditions Are you 18 or over and a patient with a rare or undiagnosed condition? Are you the parent or carer of a patient with a rare or undiagnosed condition? Would you...

SGA Study News

SGA Metformin Study Was your child born ‘small for dates’? Are they still small for their age? Has their doctor told you they may need growth hormone injections to help them grow? They might be eligible to join a new study, find out more at:...

Survey 2018

Child Growth Foundation Survey We have developed this survey to capture your experiences and satisfaction relating to the support and treatment you are receiving from the staturoty bodies and from the Child Growth Foundation. By gaining your thoughts and...

Travelling this Summer?

Travelling Tips and Information With school holidays just around the corner you may be about to travel to places near and far in search of rest, relaxation and a really good time! It is holiday season and so we thought it important to share some advice and...

Big Lottery Fund Success

Plans for this year's Convention are well under way, and thanks to National Lottery players we have almost secured all the funding for it! The convention takes place from September 28th to 30th, details can be found HERE and there is still time to book....

Disney Time

The decision has been made... This year's theme for Saturday night at the Convention is: Disney After the outstanding efforts at the Superhero evening last year, we expect this year to be even better, with princesses, knights, lions, flying elephants and a mouse or...

Who can beat them?

BBC2's Eggheads programme is on the lookout for a team. Do you have what it takes to beat them? Do you think we could put together a winning CGF team? If you have enough people to make up a team, the details are below...

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