Cordinated Care for Rare Diseases Focus Group

New research study investigating how care should be coordinated for rare conditions Are you 18 or over and a patient with a rare or undiagnosed condition? Are you the parent or carer of a patient with a rare or undiagnosed condition? Would you...

SGA Study News

SGA Metformin Study Was your child born ‘small for dates’? Are they still small for their age? Has their doctor told you they may need growth hormone injections to help them grow? They might be eligible to join a new study, find out more at:...

Survey 2018

Child Growth Foundation Survey We have developed this survey to capture your experiences and satisfaction relating to the support and treatment you are receiving from the staturoty bodies and from the Child Growth Foundation. By gaining your thoughts and...

Travelling this Summer?

Travelling Tips and Information With school holidays just around the corner you may be about to travel to places near and far in search of rest, relaxation and a really good time! It is holiday season and so we thought it important to share some advice and...

Big Lottery Fund Success

Plans for this year's Convention are well under way, and thanks to National Lottery players we have almost secured all the funding for it! The convention takes place from September 28th to 30th, details can be found HERE and there is still time to book....

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